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Thread: "I Don't Know" - Notes from the VF Symposium

  1. #21
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    I did see Dr. Abdou and I met some of his patients. To their knowledge he is not turning over his cases to a protege, which leaves others in a precarious position. He was the moderator of a panel that my surgeon was also on. He seemed "close to retirement" and I think that you can all figure out what that means. I'm not going to slam a doc that was one of the titans in figuring out these disease but there he answered a few questions twice, didn't stick to his own ground rules for discussion, that kind of thing. Hard to know how much of that is personality of course, but I heard similar tales of forgetfulness from patients.

  2. #22
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    I would prefer a younger doc my own age, 34.

  3. #23
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    Quote Originally Posted by JanW View Post
    Yes. I don't know how eager they are to link to anything--as a grassroots organization they listen very carefully to what their members say and when I went to the leadership meetings (prior to the conference; these people are all members of the organization), I found some to be openly resistance to any kind of internet communication, even in terms of getting their own message out. Many of them are older -- it seemed to me to be more a generational position than a defensible one. Certainly the membership here has the kind of view that VF would like to promote -- we are well informed. I don't see the kind of clearly wrong information that I have seen posted at other places.
    Our group really sticks to the research and exactly what the VF docs say. Whenever we get new info from the VF docs like with the Symposium notes, we incorporate that into our advice to members. I think if they knew that their fear might be alleviated.

    I've seen bad stuff out there, too. It seems to come from Weggies who don't see VF docs and/or don't understand the disease, drugs, test, etc... well enough to convey it accurately. It can really cause harm.

  4. #24
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    I'm continually grateful that Dr Seo is about my age. This is a long-term relationship.

  5. #25
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    Thanks Jan for all the informations! That would be awesome to attend! Do you know when and where there is another one?

  6. #26
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    Thanks JanW, then next one is 2012...but don't know where?

  7. #27
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    Thanks JanW for the info.
    Im so glad you were able to attend.
    Keep the info coming.

    Aunnie

  8. #28
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    They didn't announce where the next one is yet. The speculation is that it will be in the midwest or East Coast.

  9. #29
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    Yahoo! Hopefully closer to the midwest so everyone can come.

  10. #30
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    Jan, thank you for your notes, I was so sorry that I wasn't going to make it in time for the symposium. Having your notes posted makes me feel like I was there. Enjoy your vacation and happy times
    Jolanta

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