User Tag List

Likes Likes:  0
Page 3 of 7 FirstFirst 12345 ... LastLast
Results 21 to 30 of 63

Thread: "I Don't Know" - Notes from the VF Symposium

  1. #21
    Join Date
    Jan 2010
    Location
    Hoboken, NJ
    Posts
    1,425
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I did see Dr. Abdou and I met some of his patients. To their knowledge he is not turning over his cases to a protege, which leaves others in a precarious position. He was the moderator of a panel that my surgeon was also on. He seemed "close to retirement" and I think that you can all figure out what that means. I'm not going to slam a doc that was one of the titans in figuring out these disease but there he answered a few questions twice, didn't stick to his own ground rules for discussion, that kind of thing. Hard to know how much of that is personality of course, but I heard similar tales of forgetfulness from patients.

  2. #22
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    6,076
    Post Thanks / Like
    Mentioned
    13 Post(s)
    Tagged
    0 Thread(s)

    Default

    I would prefer a younger doc my own age, 34.

  3. #23
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by JanW View Post
    Yes. I don't know how eager they are to link to anything--as a grassroots organization they listen very carefully to what their members say and when I went to the leadership meetings (prior to the conference; these people are all members of the organization), I found some to be openly resistance to any kind of internet communication, even in terms of getting their own message out. Many of them are older -- it seemed to me to be more a generational position than a defensible one. Certainly the membership here has the kind of view that VF would like to promote -- we are well informed. I don't see the kind of clearly wrong information that I have seen posted at other places.
    Our group really sticks to the research and exactly what the VF docs say. Whenever we get new info from the VF docs like with the Symposium notes, we incorporate that into our advice to members. I think if they knew that their fear might be alleviated.

    I've seen bad stuff out there, too. It seems to come from Weggies who don't see VF docs and/or don't understand the disease, drugs, test, etc... well enough to convey it accurately. It can really cause harm.

  4. #24
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I'm continually grateful that Dr Seo is about my age. This is a long-term relationship.

  5. #25
    Join Date
    Dec 2009
    Posts
    752
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks Jan for all the informations! That would be awesome to attend! Do you know when and where there is another one?

  6. #26
    Join Date
    Apr 2009
    Location
    South Carolina
    Posts
    4,273
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks JanW, then next one is 2012...but don't know where?

  7. #27
    Join Date
    Jun 2010
    Location
    Rhode Island
    Posts
    41
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Thanks JanW for the info.
    Im so glad you were able to attend.
    Keep the info coming.

    Aunnie

  8. #28
    Join Date
    Jan 2010
    Location
    Hoboken, NJ
    Posts
    1,425
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    They didn't announce where the next one is yet. The speculation is that it will be in the midwest or East Coast.

  9. #29
    Join Date
    Apr 2009
    Location
    South Carolina
    Posts
    4,273
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Yahoo! Hopefully closer to the midwest so everyone can come.

  10. #30
    Join Date
    Aug 2008
    Location
    Mission, BC, Canada
    Posts
    1,802
    Post Thanks / Like
    Mentioned
    2 Post(s)
    Tagged
    0 Thread(s)

    Default

    Jan, thank you for your notes, I was so sorry that I wasn't going to make it in time for the symposium. Having your notes posted makes me feel like I was there. Enjoy your vacation and happy times
    Jolanta

Page 3 of 7 FirstFirst 12345 ... LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •