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Thread: What the Newly-Diagnosed Need to Know

  1. #31
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    Hi!! Can you tell me why you suggest not to have a flu shot. It looks as if I do not have WG after all - probably bronciectasis. I am concerned about your comment because I suspect my pulmy is going to suggest a yearly shot, because basically the only real treatment for bronchiectasis is to avoid infection. My PCP is dead set against fly shots. I will have to question her as to why she is so opposed. Anyway - I am interested in the topic.
    Jacquie (aka Lifelong Booknut)

    Updated status: "Honorary Weggie"

  2. #32
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    Quote Originally Posted by BookNut View Post
    Hi!! Can you tell me why you suggest not to have a flu shot. .
    Hi, if you have WG, flu shot can cause flaring.
    Alysia
    dx 2008


    Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
    https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
    "You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
    Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.

  3. #33
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    Quote Originally Posted by Alysia View Post
    Hi, if you have WG, flu shot can cause flaring.
    A flu shot with LIVE vaccine can cause flaring...don't want live virii in us! The kind most given at a doc's office are not of the live variety, but one should always ask. I had one this year, dead, no problems...no flu either. Sheesh! I wouldn't have a 'fly' shot either booknut!! Ducks as book flies by...LOL! I must love ducking too...OK OK, back to my coffee...sheesh...
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  4. #34
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    Quote Originally Posted by Alysia View Post
    some more things:
    1. do blood tests regularly, not less then once in a month.
    2. find or "create" a team of docs for every "organ" infected. be sure they are available when it is an emergency.
    3. listen to your body and be alert to symptoms. dont ignore them. dont wait too much when they are worsening. If you catch them early, it is easier to treat them.
    4. dont do flu shot !
    5. stay away from places full of germs etc. for example, if you need to do blood test come early when there are not yet a lot of sick people in the laboratory.
    6. walk everyday or have some other sport regularly.
    7. avoid stress if you can.
    8. go to psychotherapy, if you can afford it.
    9. eat only health food.
    10. write in this forum

    That is a wonderful list Alysia.

    No. 10 is the most important of them all
    Keep Smiling
    Michelle


    Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS

  5. #35
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    This is the best web site I have found to explain what tests need to be done and what they mean.

    Wegener's-Tests

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