Originally Posted by
me2
Ian I feel for you . I have not had ts but I have had ss. I remember reading up on ss and finding that the need for repeated treatment varied from 1 to over twenty. I just resigned myself that it was out of my control, the statistics were somewhat helpfull but ultimately irrellevant and I would just keep doing what I needed to to take care of myself . It is good news that we can keep getting the ballon as often as necessary. So far I have had one but I feel like I will not be too long to my second.
Hang in there. Eventually you will get a dilation that is your last one. I hope it is the one coming up for you. Do they use Mitomycin C for ts? They do for ss but I think not in every case. Also they do steroid injections on the inside. Does ts get those?
My doc seemed to think these drug were not conclusively helpful but still they used them.
I'll be thinking about you Aug 16th and putting out positve thoughts.
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