I was just thinking that it shouldn't put rtx in the "didn't work" category. It's always good to know there are other drugs that can be used if ctx doesn't work or if you can't take it anymore.
Me, too. I've been on this for five years, I believe. For awhile I was on this and CellCept, then my doctor told me the Bactrim alone was found to maintain remission in many instances. Since it's the cheapest medication I take, I was very glad indeed. Ha! For awhile, I was on Procrit (strimulates red blood cell production- I had lots of white and red blood cell count issues in the early stages of my treatment), and it was a $500 a week shot that my insurance (whew!) paid for. Reluctantly, no doubt!
$500 a week? Psh... pocket change.
Lovenox (injectable blood thinner): $7,000 a month ($115 per shot). I was on it for 2.5 years.
One round of rtx: $40,000 ($10,000 per IV). I've had 2 rounds of that.
Cellcept: $900 per month. I was on it for 2 years.
When friends say I'm worth my weight in gold, they're probably not far off.
Thanks Doug for the input, I thought about asking my WG specialist if I can just be on bactrim and get off the cellcept. I guess I will call her next week.
Sangye your worth more than gold!
The more Weggies get on rtx, the more valuable we all become!
How many people look at their insurance claims and payment? I am just starting to get claims for hospital care since initial diagnosis and first treatment a few months ago and find them shocking. It sure doesn't take long to run up a two million dollar tab. I remember back when my insurance had a million dollar life time cap and we figured we could never spend that much.
I always hesitate to contribute to insurance related posts because I am so lucky to be living in the UK and not having to worry about it. I'm very aware of the strain some members are under with their insurance problems and finance in general.
Health care reform in the USA seems to have fallen out of the news over here. What is the current situation? Does it look like things will be improving for those without insurance?
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