I am not officially diagnosed yet, but after finding out that my PS-3 was so elevated the research led me here. I've had a cough since March, and in May I suddenly started having pretty intense joint pain and bad blood pressure. I'd actually been on cruise in March and that led them to think I might have Malaria, which was oddly the only disease they thought of that fit all the weird symptoms.

At the end of May I ended up in the Hospital where they could not figure anything out. At that point my Hematologist (seriously low RBC) thought I might have Polymyalgia Rheumatica. Finally getting to a Rheumatologist that would listen to me, I was told that was pretty much not a good diagnosis, but that I had something Rheumatological going on which led to the test that finally found the elevated PS-3.

I am scheduled to go to Cleveland Clinic next week and hopefully get started on real treatment for this. I have learned alot browsing the forums here and appreciate everyone's sharing of info.