Just wondering how many people actually have access to such a group?
What is the experience like?
Just wondering how many people actually have access to such a group?
What is the experience like?
Probably in more highly densely populated areas there would be support groups. I have met 2 other Weggies myself. I could pobably meet more if I had more money to travel and felt better and had more time.
There is a Vasculitis support group run by my hospital, but I've never attended because I've never felt the need. Am I antisocial? I'm not sure that I want to chat about illness for an hour, I'd prefer to talk about cars.
I like the forum because I can pick and choose what subjects I feel I can contribute to and if I'm having a grumpy moment I needn't reply to anyone.
Never met a nother Weggie in person. Spoke to a couple on the phone. As far as I know (and admittedly I've never checked) there's no support group in my area.
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Diagnosed March 2003.
Currently but not permanetly residing in Canberra, Australia.
First time I will meet other Weggies will be in Long Beach, and I live right outside of NYC. A support group used to meet in my ENT's office, but I think that the woman organizing it went into remission, had kids and could no longer do it. However, I much prefer to talk to people on line and suspect that it would always be that way, no matter what kind of issue I was dealing with. I prefer this mode of communication.
I seem to remember reading a Sci-Fi novel where all communication was via video link. The main character caused quite a stir when he went visiting people in person.
It is wonderful to have real people to talk to and share with. The internet is good, but really seeing people and sharing snacks and stories is so muc better. The difficulty it getting the message out to others. I took advantage of whatever free advertising there was and actually paid for a little. I live in a town of 80,000 and have gotten some work to a neighbouring town so some people come from there as well. I shared the work with a fellow weger person. I don't think either of us could have don't it alone. When I don't feel good she seems to be Ok and vise versa. Perhaps you have a healthy person to help. Her husband also helps some.
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