Thanks Sangye, Couch potato mode fully working today. Hope you are taking thing easy after your recent scare too.
Thanks Sangye, Couch potato mode fully working today. Hope you are taking thing easy after your recent scare too.
I didnt know all this info about pred. I have tried to inform myself but obviously not enough. I have tried before to find people to talk to about it but never came across anyone before now. The specialists have always made me feel like it wasnt necessary for me to be on it. When I tell them I get syptoms when reducing, one of them said "no one gets sick when reducing. how can you be getting sick its not possible" Do you know Ive learnt more about pred and WG from you all in the past few days than I have learnt from the Doctors in years.
I will be kind to myself and not overdo things anymore now I get whats going on.
Jack, thats awful that you had a hard time at your BBQ. I hope your feeling better today. Its awful what illness does to you. Was wondering what dose of pred your on and what side affects you get from it. Do you guys manage to work as well? I had a business of my own (dog grooming) and could work 7 days a week before I got sick. Now I can only work a bit. which is better than nothing cause I love my job, would hate to have to give it up.
Bit of Pred mind muddle going on there. It was Hammy with the BBQ problems.
I probably should not go into all the Pred side effects I've had over the past 25 years, it's not a happy story. I can't get below 10 mg and the down side is that they have now wrecked my body to the extent that I find it hard to get around. The up side is that they enabled me to hold down a full time job and raise a family.
Hi Jen, thanks for asking and i am a lot better today. I'm on 30mg Pred currently. Had to increase after a failed taper last month. The, side effects for me are emotional ones with weight gain. The weight gain is also because i was running 20+ miles a week before and always on the go and now do no running and a lot less activities generally. I tend to rest the day before I go to work and manage to get by OK. Being able to support the family through bringing in a wage is important to me, although If I felt as bad as others here, I'm sure I would think again. We are all affected in different ways and degrees, but If you want to, and feel you can, then working takes your mind of WG and by concentrating on the job I find I only get tired after i finish......couch potato again for the evening! I guess you have tried just working mornings and resting in the afternoons or something similar, rather than work from monday to 'knackered' when you are forced to rest?
Hi Jen..
I have to take a daily dose of Pred. I was down to 5 mg a day but because I am in the middle of my 2nd round of rixtuxan, my Dr. bumped me back up to 20 mg a day till we are done with treatment this time. So I understand the emotional rollercoaster. My husband states that She-hulk has returned. LOL. When I was on even higher doses- it was DON'T POKE THE BEAR!! between my husband and my bro when I had recently gotten out of the hospital. But I still have my moments of sadness but I just tell myself it could be worse. Be grateful you are here and hopefully have people around you that love you. If not, U got us here!!
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