Sangye's Status

[Brooke]

Sangye - I am glad you are tolerating the high dose preds somewhat ok. At least you do not have to take them for that long, count down the days!!

[Sangye]

Lola-- wow, what an amazing coincidence. I sure hope your vertigo is gone for good. Thank you for your very sweet comments. Means a lot.

Brooke-- I'm definitely counting the days! I hope it works to stop the vertigo and imbalance as well as the hearing loss. I'm staggering everywhere.

[Terri]

As much as you do for us Sangye, I certainly would come help you out.
If you are staggering about at least have someone to check on you everyday. You could easily fall and be down awhile before anyone would know. Please be careful.

[Sangye]

I know you're serious, that's what is just amazing to me.

Please don't worry. I have people checking on me and helping me get to appts, etc.... The good thing is that I was quite weak for so long and was constantly at risk of falling, so I learned how to be very careful. It took a few falls to hone my skills. For example, I have a stand-up shower (ie no bathtub) that is narrow, and when I close my eyes to rinse I make sure to be in solid contact with 2 walls to maintain my spatial orientation. The good thing about living in a teeny tiny basement is that a wall or countertop is always just a few feet away.

[Terri]

I knew you would be ok but I will rest easier tonight knowing you have people to check on you.
Please have a good night.

[Aunnie]

Sangye,
I don't any of you very well but you seem to be very popular,cared about and knowledgable.
Please know you are also in my thoughts,I don't do very well on pred either.
How sweet of Terri,what a supportive group.
I guess we all wish we could help each other more,because we get it (I think) about this crazy disease.

Let us know how you are doing.
Good luck and be careful with the dizzies.

Aunnie

[elephant]

We have a wonderful group here on this forum. I know if one of us needed help someone on this forum would come to their rescue.

[Theresa]

Sangye,
I have not been in this forum long but you have helped me out with every question or problem I have had. I really appreciate it. Know that I am praying for you. Keep us posted on how you are doing.

[DEE]

hopefully following all the good advice she gives me doing as she s told resting and taking things easy take care or you for a change DEEx

[Sangye]

Thanks you guys. Your words are great comfort to me. I'm doing okay. Hearing and balance are still way off, but my chiropractor helped a lot today and I go back on Monday. Hoping the 3 more days of 60mg pred do the trick!