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Thread: Sangye's Status

  1. #11
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    Sangye get better soon!! I am so sorry you are going through this! We all miss you

  2. #12
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    Sangye that's just rotten, I hope they fix you up soon and the 40mg of pred is bearable - although I have my doubts and really feel for you.

    Thanks Phil, I know this is a difficult time for you as well.

  3. #13
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    Thanks Phil. Please let Sangye know I am thinking of her a d wish her a quick recovery. How are you doing>
    Jolanta

  4. #14
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    Thank you Phil for the information, please send her my love and prays
    .

  5. #15
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    I am very tired and exhausted and have no energy. It must be the TB meds.

  6. #16
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    deepest thoughts are with you sangye.get well soon.

  7. #17
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    There's an addon that I can install that should allow her (and others) to post with an iPhone. I'll give it a shot tonight.
    Forum Administrator
    Diagnosed March 2003.
    Currently but not permanetly residing in Canberra, Australia.

  8. #18
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    Quote Originally Posted by Luce View Post
    Sangye that's just rotten, I hope they fix you up soon and the 40mg of pred is bearable - although I have my doubts and really feel for you.

    Thanks Phil, I know this is a difficult time for you as well.
    Is 40 considered a lot? I have been on 60 since my discharge from U Medical Center. I came back today today to evaluate and treat a probable flare up that is causing more hearing loss in only ear with still some limited hearing and some apparent attack on cartilage in throat area. They are starting me on 125 mg steroids every six hours and will consider starting plasmapherisis tomorrow. The first time I was here they had me on 1000 mg for some time so I wonder is 40 going to help her regain some remission. I know people vary as does the intensity of their Wegener's and my case is probably much worse than many others which means my treatment may need to be more aggressive.

  9. #19
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    Quote Originally Posted by drz View Post
    Is 40 considered a lot? I have been on 60 since my discharge from U Medical Center.
    No, 40 would not usually be considered a particularly high dose to treat a problem, but Sangye has particular problems with taking Pred and can barely tolerate 4mg. This is going to be rough for her.

  10. #20
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    Does anyone have Sangye's cell phone number. Maybe someone can call her.

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