Sangye's Status

[LisaMarie]

Sangye
How are you feeling today??I am still in my waiting on return calls from insurance companies and doc's ...Patience is not my strong suit today.
Hope you are still slowing getting better

[Sangye]

Thanks for asking! I saw my Wegs ENT at JHU today. He said I had "sudden sensorineural hearing loss" which he thinks was caused by an inner ear virus. He said if a virus causes only vertigo, it clears without doing damage. But if it also causes hearing loss that's usually permanent, so they give high-dose steroids hoping to save at least part of the hearing range.

The vertigo has pretty much resolved--everything is just kind of bobbing and sloshy now. That should continue to improve.

When it all began, I developed numbness on that side of my face, ear and head, and none of that sensation has returned. He's not sure about the cause of it. My original brain MRI was clear, but he'll have a JHU radiologist look at it and see if we need to do another. He also might do a more focused CT of that area.

My hearing test showed that I gained back one of the high frequencies compared to 1.5 wks ago. Frequencies above that are still totally gone. But the range that hears human voice is intact, which is the most important. Things sound tinny to me. (That's on top of the tinnitus) Like everything has a zzz sound to it. He said that's normal for the ranges I lost and I'll get used to it. The hearing loss is likely permanent at this point. I can live with it.

He's going to talk to an otologist there to see if steroid injections into the ear will help, since I'll be off the big pred doses in a couple days.

He had to tell two patients before me that they had cancer, and each had to start radiation and chemo. I overhead the conversations and when he came in the room he just looked beat. He apologized for being late and I felt so bad. I told him I'd heard and not to worry. My little concerns are nothing like being on either end of those conversations.

[elephant]

Sangye glad you back, the virus sounds like Bell's Palsy..numbness to the side of the face. Hope you get it all resolved soon, so glad the WG is sleeping.

[Sangye]

Bell's Palsy is pretty distinctive and typically involves the mouth and eye. Those are fine. Bell's Palsy is inflammation of the Facial nerve. My symptoms encompass the Facial nerve distribution plus other sensory nerves on the side of the head, and even the ear canal. The numbness follows an odd pattern-- like someone hit me on the side of the head with a frying pan.

[elephant]

Sangye maybe you have Bell's Palsy plus 5 minus two( mouth and eye).

[Sangye]

You know, with Wegs, that sounds about right. LOL

[pberggren1]

I didn't know that Wegs involved Math.

[elephant]

Actually everything in this world is mathematical.

[brocky99]

What a small word my 12 year old daughter got diagnosed with bells palsy yesterday. She came home on Thursday night to tell us that her left hand side of her face had dropped. We took her to the doctor who referred her upto the childrens ward at our local hospital. She had some blood tests done and then sent her home with 40mg of pred a day and some anti biotics. I have told her all the side effect of the pred and so far she is ok. Hope u get better soon Sangye xx

Lisa

[Lightwarrior]

Actually everything in this world is mathematical.

I agree..my grandkids do groan however when I tell them that math is the key to unlock all of the secrets in the universe.