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Thread: Update on pberggren

  1. #461
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    Sorry you have to go up on the prednisone, but that is the only alternative right now. Thanks for the update!

  2. #462
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    Get wells soon Phil!!!

  3. #463
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    Aww Phil, I'm sorry to hear that. You must be feeling so lousy. I didn't realize you had a saddle nose. I hope the increased pred gets you feeling better and convinces the Wegs dog to take a nap. Hugs to you.

  4. #464
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    Thanks guys:

    Saw the new lung doc today. Seemed quite nice. He wants to do a bronchoscopy on the 18th. So I will go back to Regina on the 17th and spend the night. He agrees that the Wegs could be smoldering away and causing unknown damage.

  5. #465
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    Sorry Phill, I so hope you get rid of all these nagging flareups of unusual wegeners side effects. Get better please
    Jolanta

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    Thanks Jolanta,

    I hope I get feeling better soon as well. I think the fatigue is a combo of a smoldering Wegs, the lung infection, and the antibiotics I am on.

  7. #467
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    Quote Originally Posted by pberggren1 View Post
    Thanks Jolanta,

    I hope I get feeling better soon as well. I think the fatigue is a combo of a smoldering Wegs, the lung infection, and the antibiotics I am on.
    Sounds like a reasonable guess at your diagnosis Dr Phil. Hope you get some more answers and find the treatment that works for you.

  8. #468
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    Wishing PHil the best and a quick recovery! Firecracker thanks for posting and I sent you an e mail for Phil. You're the best
    Lisa (coffeelover)

  9. #469
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    sorry to hear your not to good Phil , hope you get some answers soon and get on top of it all .
    Diagnosed March 2001 ... WG Involvement - Ears . Sinus ( saddle nose) , eye ( blind Left )
    currently on 5 mg Pred , Myfortex 6x360mg/d , Fosamax 70mg .

  10. #470
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    Had to go to ER this morning around 5 am. Was having severe chest, throat, ear, and head pains. To make a long story short the Pulmy said it was a reaction to the bronch I had on Friday. I was released at 2 pm.

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