Update on pberggren

[Luce]

Phil
Good to hear from you and sorry to hear that you have TB. Any idea where you might have contracted it?
What about the wegs, will the TB or the drugs for it have any effect on the disease?

Here's to a speedy recovery

Luce

PS: Out of sheer curiosity, what's your doctor's name?

[talentx7]

get well soon!!

[pberggren1]

I'm not sure if the TB or the TB drugs, which are anti-biotics, will have any effect on Wegs or vis versa. I asked my Doctor that same question and he said that obviously being immuno-suppressed doesn't help things but other than that no one is sure.

My doctor's name is Senyo Tagboto.

He lowered my dose of Pred to 10 and my dose of Cellecpt to 1g 2xd.

The nurse with the TB drugs will be coming soon.

Thanks to All,
Phil

[Luce]

Thanks for the info Phil, I assume he's lowered your doses to try and give you a bit of immune system back to help fight the TB. That must be a dangerous game to play but I guess has to be done in the circumstances.

I hope the TB drugs agree with you and don't have too many side effects.

[berylj]

HI PHIL
i had TB as a child, when wegs was dx 4 yrs ago was put on isoniazid, pyridoxine &co-trimixazole, for 6 mths, to prevent TB recurring, i cant
recall any nasty side effects from these, although i was on high doses pred & mmf as well!!
sounds like you are in good hands, wishing you a speedy recovery,
good luck from berylj

[brocky99]

Hi Phil,

Glad u are home, sounds like u have found a good doctor there hope u feel back to yourself soon

Lisa

[jola57]

You are right Phil, some things are just meant to be. Glad that you found a good and knowlegeable doc. Now just get well soon.

[Lightwarrior]

I just got back home from the hospital....new doc is awesome. He is from the UK and specialises is Wegs, Nephrology, and Internal Medicine. It is obviously Divine Providence that I went to the ER on June 23. He knows Bacon and Savage and Adu. So I obviously wont be going to Mayo or Toronto now. God Bless to All, Phil

Phil,
Wow, I have been off of the site for a few days and I was really scared to open this thread, I am sooooo happy that you are home. I am sorry to hear that you have TB, however it can be managed and I agree with you that it is Divine Providence that you went to the ER and made the connection with this Doc. I am sending you light and energy. I am thinking about you and so glad to hear that you are doing better and that finally all these strange things happening to you make sense and you have a Doc who can understand the ever shifting puzzle pieces of Wegs.
Namaste Phil

[Aunnie]

HI Phil,

I also haVE BEEN OFF FOR AWILE,BUT HAVE BEEN THINKING ABOUT YOU.
SO SORRY ABOUT THE TB,WE ARE SO SUSCEPTIBLE TO MANY THINGS.

Get well soon,and keep us posted.

Aunnie

[pberggren1]

I just got a call from the TB Clinic and I don't have TB. They said it looked like TB under the microscope initially and put me on the TB meds just to play it safe but that the culture did not show the actual TB strain.

So now it is back to the drawing board.