Hi Phil,
I'm sorry to hear about flare and all of the medicine you have to take. It can be so scary when the WG rears its ugly head and reminds us it's always there lurking in the background. I hope the medicine helps and you start feeling well again soon.
I read you something you just wrote and wanted to ask you about it. You said something about sticky mucus. I have had WG since 2005 and it has been well-controlled all this time, but I have had severe congestion for the past several months and sometimes it feels so sticky that I cannot cough it up. I have been telling my pulmonologist that I think this has something to do with my WG but he isn't completely certain. It is to the point where I don't do much activity because I have trouble breathing with all of the congestion. It's not an infection because it's been ongoing since last May. Do you think it could be a new component of WG that I just haven't experienced yet? I was thinking about making another appointment with my pulmonologist but I have to tell you, it's reaching a point where I feel embarrassed to be calling again. My nose has also been so stuffy again that I find myself holding it open while I work and I'm on 5 mg. of Prednisone daily, 20mg of MTX weekly and a massive dose of steroid nasal spray every day. I'm bummed and a little worried about what the next step could be if I'm having a flare despite the medicine I'm on. I'd love to hear your thoughts on this, although I suspect I already know the answer.
Thanks,
Shannon
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