User Tag List

Likes Likes:  7
Page 10 of 10 FirstFirst ... 8910
Results 91 to 94 of 94

Thread: Tracheal stenosis and remission

  1. #91
    Join Date
    Jul 2014
    Location
    Australia
    Posts
    28
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    My experience has been, the subglottic stenosis slows during remission and speeds up during flares.

  2. #92
    Join Date
    Jan 2018
    Posts
    27
    Post Thanks / Like
    Mentioned
    4 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Tracheal stenosis and remission (vs. esophageal stricture)

    In the past I used to have duodenal ulcers from taking too many NSAIDs trying to cure my "illnesses" to function at work. I stopped taking NSAIDs for that reason but my illnesses progressed. My newest Endoscopy finding is now "esophageal stricture" with "chronic gastritis". They took a biopsy.

    Gastroentologists don't know anything about this disease to discuss it. The same with all the highly trained Neurotologists, ENTs, Neurologists or GPs etc. No one has any awareness of this in order for me to be able to ask anything. The Gastro. did not even know what Kefir was!? In the past I've had years of severe chronic asthma which collapsed parts of my lungs, which of course affected my trachea for quite some time adding dysphagia to the mix. My asthma is currently under control, but my sinuses continue to be a horrible consistent problem with occasional sore throat, a "broken" Eustachian tube and ruined ears. Past of many elevated WBC and "odd" influenza type issues.
    I am progressively getting worse and don't know what to do.

    Are these symptoms commonly seen in Wegeners? I don't know if there's a difference or correlation with trachea stenosis to esophageal stricture/stenosis etc. (as it seems to be all in the same "windpipe"?) How does one test this? -H.

  3. #93
    Join Date
    Nov 2014
    Location
    Central Pennsylvania
    Posts
    196
    Post Thanks / Like
    Mentioned
    5 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Tracheal stenosis and remission (vs. esophageal stricture)

    Mostly by an ENT doing a scope would be my guess?? Thats how my stenosis was dxed.

  4. #94
    Join Date
    Oct 2017
    Location
    Miami Beach
    Posts
    76
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Tracheal stenosis and remission (vs. esophageal stricture)

    Quote Originally Posted by Helen View Post
    Are these symptoms commonly seen in Wegeners? I don't know if there's a difference or correlation with trachea stenosis to esophageal stricture/stenosis etc. (as it seems to be all in the same "windpipe"?) How does one test this? -H.
    There are many types of vasculitis.
    This is a question for your rheumatologist.
    I't seems to me that the complications you describe that you were not in remission and the relapse was not managed well.
    Your rheumatologist should be the go-to doctor and he/she should manage the team of specialists.

    Ed.

Page 10 of 10 FirstFirst ... 8910

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •