User Tag List

Likes Likes:  7
Page 8 of 10 FirstFirst ... 678910 LastLast
Results 71 to 80 of 94

Thread: Tracheal stenosis and remission

  1. #71
    Join Date
    Jan 2010
    Location
    Hoboken, NJ
    Posts
    1,425
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I think that some docs use laser to burn away the scar tissue -- but my sense is that more do the more sophisiticated procedure you're talking about -- using it like a knife.

    What is the criterion for them using myomicin C in some cases and not others?

  2. #72
    Join Date
    Sep 2010
    Location
    Osnabrück, Germany
    Posts
    93
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Not quite sure, but he said that to use Mitomycin C you had to use a thicker and stiff scope which could end up damaging the airways more, and then create more scartissue. So it's a matter of weighing the pros and cons.. I guess they will consider using it next time if the first dilation didn't have satisfactory results.

  3. #73
    Join Date
    Jul 2010
    Location
    Blacklick, Oh
    Posts
    1,399
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default

    This mirrors what my ENT said to me last visit pretty closely. He said you actually are taking a bigger risk using a knife due to proximity to the vocal cords.
    ~ Bob

  4. #74
    Join Date
    Apr 2013
    Posts
    8
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    well this tracheal stuff has me scared,
    i am a singer and a singing teacher,
    and i have been hoarse w/ this disease,



    kim

  5. #75
    Join Date
    Oct 2011
    Location
    near Phx, AZ
    Posts
    1,809
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default

    Quote Originally Posted by GreenTara View Post
    well this tracheal stuff has me scared,
    i am a singer and a singing teacher,
    and i have been hoarse w/ this disease,
    Ever try Entertainer's Secret? Available online...helps immensely with the cough, hoarseness,, and dryness that comes with WG and it's drugs. Best to you.
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  6. #76
    Join Date
    Nov 2015
    Posts
    2
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I don't know but my stepson Ryan has had about 8 teach surgeries was in remission went off prednisone and then it came beck now in his lungs as well. Has just had surgery on lungs.


    Sent from my iPhone using Tapatalk

  7. #77
    Join Date
    Jan 2016
    Posts
    82
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Hi apologies firstly if this has been asked in the past but Im currently in remission with WG according to my dr but noted to my ent that at times when i do heavy exercise i wheeze a bit. He had a look and said yes looks like some stenosis. Questions
    1. Is it common to have stenosis even when in remission?
    2. Does it often get better, stay the same or worsen?
    3. Ent dr asked i increase my prednisone whereas immunologist said dont increase it...which one to go with?
    4. I dont have any inflammation or redness apparently so sounds like fibroblasts or scar tissue...is it a gradual thing?

    Sorry for all questions but im a little worried given everything else is good but my immunologist doesnt seem too concerned

    Sent from my SM-G900I using Tapatalk

  8. #78
    Join Date
    Apr 2010
    Posts
    909
    Post Thanks / Like
    Mentioned
    14 Post(s)
    Tagged
    0 Thread(s)

    Default

    It is not uncommon for stenosis from WG to happen even when in remission. I have had stenosis during remission. The good news is that it is usually fairly easy to fix. I have had dilation done maybe four times and I have had great results each time. It is not a real scary procedure either. I go home the same day- and can breath better right away.
    If it is scar tissue from WG I don't believe it can get better on its own.
    For me it has always been fairly gradual but I think I have heard of cases that progress fairly quickly.
    I don't think prednisone will have much effect on stenosis and even if it has some effect it is not a treatment. Stenosis will not stay improved from prednisone and of course you don't want to get stuck on higher doses of prednisone.
    If it were me and I wanted to test the effect of prednisone I might try it at a higher dose for a very short time and then reduce back down to baseline and see what the effects were. Of course I would run this by my doc before trying it.

    I think stenosis is one of the rare cases where treating the underlying disease has little to no effect on the secondary problem.

  9. #79
    Join Date
    Jan 2016
    Posts
    82
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Yeah ok thanks for your response. So is it possible that it stays the same? Odd my immunologist responded that it is possible that it resolves on its own. Not sure how though.

  10. #80
    Join Date
    Apr 2010
    Posts
    909
    Post Thanks / Like
    Mentioned
    14 Post(s)
    Tagged
    0 Thread(s)

    Default

    It is definitely possible it will stay the same. Resolve on its own? I don't know. I have not heard of this or experienced it myself. I have tolerated mild stenosis for long periods of time but now that I know how easy the repair is I enjoy having an open airway and would not wait very long to get it fixed.

    For me the line in the sand is if it is limiting my activity in any way. If it is not limiting then I would probably wait.

Page 8 of 10 FirstFirst ... 678910 LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •