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Thread: Tracheal stenosis and remission

  1. #41
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    Who gave you the magic 80 percent number, Psyborg? I was at 2.5 mm at dx, and opened back up to about 7 mm when all was said and done (normal about 8 or 8.5). My doc would operate again when I got around 5 mm, and I would probably just barely be noticing it at that point. My stenosis is in the subglottis though, very little in the trachea, so I'm not sure if that's where the difference lies -- maybe it has to be really bad before they will touch the trachea since it's hard to get to?

    And how would they open you up? That's the other question.

  2. #42
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    Well my ENT (at CC) wants to do the procedure with Laser, my Wegs Specialist says NUH UH! So anyway they'll have to work that out.

    I guess I thought it would continue to get worse and I'd need the procedure eventually, now I'm wondering if I should do it at a stable point to make things easier to do again as far as aerobic activity.
    ~ Bob

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    Huh. That's interesting. Is your guy at CC, Dr. Lorenz (who I have read is an expert in stenosis) or one of his associates, then I would say OK, but yeah, a WG specialist in general is going to give a big fat no to laser because of the risk of a lot of scarring with it.

    This is tricky because there are a lot of different levels of severity with this condition, and many diferent procedures to correct it.

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    My specialist is Dr Villa Forte. My ENT is Dr Knott, who they work with regularly. His opinion is there was less danger to the voicebox going in with the laser than with a knife. I'll let them work that out though
    ~ Bob

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    Well, tomorrow morning I am haveing dilation for sub glottic stenosis. Wish me well. I had it done once before about 1 year 8 months ago. That is not too bad of a run I guess. Still , I could have done other things tomorrow. But I like breathing so away I go. 'See' ya'll when I get back.

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    Best of luck, Kirk.

  7. #47
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    Thanks Sangye. I appreciate the moral support.
    I really like this doc and his staff, we all know how much that means. (As a funny side note, my doc has a new nurse who did my pre-op appointment yesterday. She is from Pakistan and it turns out likes gardening like I do. So tomorrow I am taking her some red mustard seeds that I told her about that is one of my favorite plants in my garden. She said she would find something to trade with me. Its funny how just a little personal connection like that can feel so good. She has a cool name that I have never heard before - Nargis . )

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    good luck

  9. #49
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    Quote Originally Posted by me2 View Post
    Well, tomorrow morning I am haveing dilation for sub glottic stenosis. Wish me well. I had it done once before about 1 year 8 months ago. That is not too bad of a run I guess. Still , I could have done other things tomorrow. But I like breathing so away I go. 'See' ya'll when I get back.
    I hope all goes well with your procedure today. Good luck.
    ~ Bob

  10. #50
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    Good Luck Me2.

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