Ticklytoes -
No I am not in remission yet, though things have been going well and we have been decreasing my dosages of pred & cytoxan lately. I actually had 4 surgeries on my airway last year, between February & October. The first time, my doctor went in and refused to do anything since it was so small and near my vocal chords. He conferred with some other local ENT's and referred me to Lucinda Halstead at MUSC in Charleston. She took one look and told me I would need a trach because my airway was the size of a 6-month-old (I think that's about like 5 mm)... thankfully they were able to manipulate all the tubes so that was avoided. When I woke up, I was so relieved that I didn't have a trach that I started crying! Anyway, I don't know if there's any way you could work it out to see her, but she is an excellent doctor. She has been specializing in the area of subglottal stenosis since the early 90's, I think, and is an expert at the surgeries. I asked her about long-term damage due to the laser, steroids, etc, but really there is no other option besides a trach, so there's not much that can be done about it, other than praying and hoping for the best.
Elizabeth J.
Officially a Weggie since April 2007
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