Wegener what?

**survivor** · 06-08-2010, 05:57 AM

Hi elephant. Believe me, I am glad too! Dr. Cichevski is really a good doctor, but most of all he is a conscientious doctor. He does not leave aside any clue about an illness and is quite willing to spend (as he did with me) two hours questioning me about symptoms, feelings, and so on. I met him at the hospital, and I was referred to him by a good friend of mine, Dr. Fugasot, who is an ORL. Dr. Cichevski just knew there was an illness that was called WG and its symptoms, but had not ever treated a case of it. He was frank about it, and he consulted with WG especialists on the internet to choose the best medication for me. Yes elephant, I am doing great, and feeling great. See you soon.

**survivor** · 06-08-2010, 06:06 AM

Brooke, I said thank you many times now to those members that saluted my presence in the group, and I will say thank you to you again. But believe me, every time I said it I meant it. I hope we'll share our experiences often.

**Lola** · 06-09-2010, 03:39 PM

Welcome, Survivor. I am glad you found us for our sakes. You have much to offer, and you sound like a very happy, positive person.

I am curious about your dizziness. Was that part of the Wegener's disease do you believe? Was it true vertigo, whereby the room spins and causes horrible nausea? I've had that symptom twice - the first time was in 1990 before I was diagnosed.

Unlike Phil, I only know a couple of Spanish sentences: A Carlos no le gustan las legumbres, ni a mi, tampoco.
I believe that says that Charles doesn't like his vegetables, and neighter do I...but I could be way wrong!

**pberggren1** · 06-09-2010, 04:34 PM

That sounds right Lola.

**Cindy M** · 06-09-2010, 04:46 PM

Welcome Enrique, It sure sounds like you have been through alot. This disease has a mind of its own. I am glad that you were able to get through your first round with Wegs.

**survivor** · 06-10-2010, 07:39 AM

Originally Posted by Lola

Welcome, Survivor. I am glad you found us for our sakes. You have much to offer, and you sound like a very happy, positive person.

I am curious about your dizziness. Was that part of the Wegener's disease do you believe? Was it true vertigo, whereby the room spins and causes horrible nausea? I've had that symptom twice - the first time was in 1990 before I was diagnosed.

Unlike Phil, I only know a couple of Spanish sentences: A Carlos no le gustan las legumbres, ni a mi, tampoco.
I believe that says that Charles doesn't like his vegetables, and neighter do I...but I could be way wrong!

Thank you Lola for your words. By the way, Lola is short for the very Spanish name Dolores, which means "pains". It derives from the ancient name Dolores de María (Pains of Mary, Mother of Jesus).
Ok, my dizziness. It started in August 2008, and, more than anything, it was a nuisance. I was told that it was a consequence of my hearing loss, which was increasing with time. Then, in September, while I was reading, seated in an armchair and not moving at all, the whole building started to collapse. I grabbed the armrests, as I tried not to fall through a hole in the floor.
My God, it was nasty! Then they became more and more common, without any prior symptom that announced them. Three times, while I was driving, they struck. Every time they were more pronounced, but never lasted more that one or two seconds. And with them came the nausea. Not once, but many times, while I was on the street or talking with someone, I had to look for a place to, well, relieve my stomach. One particular thing: while I was struck with vertigo I never lost consciuosness. The most painful experience was when I was talking with one of my sons and a friend of his and all of a sudden I fell backwards and opened my scalp and needed ten stitches.
Vertigo is now completely gone. A doctor friend of mine, who is a specialist in autoimmune deseases, told me that indeed, vertigo is part of the desease, although the mechanism that triggers it is not entirely known.
No, it is not wrong; your translation, as Phil says, is quite right. Maybe I should start a Spanish course for my fellow members, provided you do the same for me.
And one more thing: A Carlos no le gustan las legumbres, y a mí tampoco.

**Lola** · 06-10-2010, 08:23 AM

First of all, Enrique, thank you for the corrected spelling. I was going back 40 years to high school, for pete's sake.

I love the meaning of Lola - my internet name. How interesting that I would choose that name.

Thanks so much for the information on dizziness. Yes, I've had those same episodes of needing to hang on for fear of going through the floor. I've only had a couple of episodes that lasted all day. Those were absolutely horrible, but have fortunately not been driving or standing when they occurred. Both of the bad episodes happened while I was sleeping and tried to roll over.

So now I wonder if these are signs of a flare, or just plain residual damage.

Cheers, Adios, Ciao, Aloha, and until next time, Lola