My only son Died from WG

[Sangye]

The past 3-4 days I slid backwards a bit (until last night, when I slid DOWNWARDS a lot!). But for the 2 weeks prior, I've been feeling better than I had in 4 yrs. The ctx was kicking in. It gave me a lot of hope that I can get better. I had energy and wasn't hitting the wall. I'd forgotten what that felt like.

[crackers]

sangye every thought i can muster is on it's way to you.
john.

[Sangye]

Thank you, John. I believe I can turn the corner again. Hey, if you keep turning the corner, don't you really wind up going in circles??

[Doug]

Best wishes from me, too, Sangye!

[Cindy M]

Sangye all my positive thoughts are with you. I feel like we are BFF's, I know with your positive attitude you will soon be feeling better.

[DuaneHart]

Hang in there Sangye! I am still new to all this but am gaining alot of insight to what WG is all about (along with alot of weight from the pred). Tomorrow I take the Methatrexate again, increasing by one pill. That will put me at 12.5 mg. Can anyone tell me what to expect as I increase the dosages?

[Sangye]

Thanks, everyone. I've taken 5 mg pred for 3 days in a row. The knee is doing better--still pretty awful, but would be much worse without the pred. And I'm only coughing up trace amounts of dried blood. I'm gonna do this for one or two more days and then stop the pred. Even just 5 mg is keeping me from sleeping, making me sweat and feel hyper, etc....

[jola57]

Glad the pred is doing its job, hope you are keeping tabs on lyour intercranial pressure. How soon can you taper off the pred?

[Sangye]

So far my head is okay. Today I took 2.5 mg. Because I haven't been on it for more than a few days, there's no need to taper.

[jola57]

glad you do not feel the effects of withdrawal.

Question to all. I recently purchased a memory foam bed topper and although it is sooo comfy I am just a tad worried about the smell and or gases emitting from the mattress. On line the opinion is varried. Has anyone bought this product, how long did the smell last (I have aired it out for the past 3 days) any bad reactions to the smell/gas