Sue--At first I stayed with local docs because they were convenient. Over time I realized they didn't have the skill to treat the Wegs, much less all the complications I had. I started going to Mayo clinic, which was 3 hours one way. Well worth it. Now I'm in Maryland, and I go to Johns Hopkins, 1-1.5 hours away.
I really recommend going to a better facility that knows Wegs even if it means more driving. You'll get more answers (which lowers your frustration) and may avoid complications.
You just can't compare the experience and comfort level of a doctor who's only treated Wegs a few times, versus one who's seen Wegs patients day after day for years. A lot of the complications I had totally stumped my local docs. If Jack says the QE in Birmingham is good, he would know.
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