My son is Trev, his story is posted on an introductions thread. He is now 18 and in an adults world not copeing well mentally. Everyday is a struggle, I hope there is some light at the end of the tunnel. Most WG patients I see all over the web at least acknowledge they have issues and try to do something about them. Trev persists in ignoring all the boundaries, lives life like there is no tomorrow.. Legally he is an adult now, but I still struggle daily keep him going. Depression is not readily mentioned, but it is a huge part of his life plus ongoing issues which he tends to ignore.
Employment is also an issue, due to tiredness and physical restrictions.. Mainsteam can see a normal healthy teenager when they look at him.. he has many external scars hiden by hair of clothing, but his internal scars run deep. So he spends his days sleeping, playing xbox and online gaming. Sad really, but all the help I have managed to get him just see him as an average teenager.. or too hard.. as he dosen't fit into a box..
If there is any advice on how others are handling these issues.. I would gladly appreciate it.
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