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Thread: Arrrgggg! Its got me..... or is it I got it?

  1. #41
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    That is great to be able to celebrate one year of drug free free remission. Happy Anniversary!!!

    Quote Originally Posted by renidrag View Post
    Welcome Hammy, I too was very active and have had to cut back quite considerably. WG presented in my lungs so running was out of the question but in the beginning so was walking and stairs. I can do both those now, although only about fifty yards and then rest. Although I also have COPD I stlll think the WG is partly responsible. Diagnosed August 09 and drug free remission exactly one year ago today. Still do COPD maintenance though.
    Dale

  2. #42
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    Quote Originally Posted by renidrag View Post
    Diagnosed August 09 and drug free remission exactly one year ago today.
    Dale
    Happy Belated Drug-free Remission Anniversary, Dale! LOL Wishing you many more just like that.

  3. #43
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    So after 5.5 years I can finally report that I am off the pred It fought me right upto the end and on my final reduction , I thought it was gonna win. But two weeks in, the side effects have gone. I have only been able to achieve this due to the Rtx.

    I found that when I was having an armful every 6 months, I could reduce the pred down to 2mg but as the befefits waned, I would have to increase again. Thanks to Geoff and Dr Jayne, I was approved to have Rtx every 4 months instead. This has stopped the dip and allowed me to get my life back to near normal. It has to be mentioned that I have a long way to get back to anywhere near how I was pre WG but am going slowly in the right direction. The next test will be in 16 monthe when my course of Rtx finishes. Will I be in remission or will it come back again? All I know is I am gonna enjoy it while it lasts.

    I don't come her now very often. It's not that I don't feel for all of you who are starting the WG journey, because I do, but more because I made some special friends when I was learning all about the illness - some are in remission, some have died, some I am still in contact with - some are just MAD but they are part of me.

    I sure you to will create your own group of friends get great advice and in time understand and not be scared of WG. I wish you all well.

    So, if luck is with me my next post will be in 18 months after I'm off all drugs - if earlier then you know ...........
    Arrrgggg! Its got me..... or is it I got it?

    Behind every great man is a woman rolling her eyes.
    Jim Carrey



  4. #44
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    Good luck Hammy.. and congrats for being able to get off the pred. I hope all goes well for you and you are able to get into a drug free remission ... but you don't have to stay away.
    Life isn't about how you survive the storm, but how to dance in the rain !

  5. #45
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    Fantastic to hear the news, Hammy. Go enjoy yourself!

  6. #46
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    Can't wait for the good news in eighteen months Hammy. How to make a thread a "best seller?" See "Sangye" in a reply. Hope you are well my friend.
    Dale
    Dx Aug, 2009 Remission June 2010 until 8/1/2014

  7. #47
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    Quote Originally Posted by renidrag View Post
    How to make a thread a "best seller?" See "Sangye" in a reply.
    Nice to know she is still lurking
    Behind every great man is a woman rolling her eyes.
    Jim Carrey



  8. #48
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    LOL I occasionally take a peek just to make sure you two are behaving. I'm looking at you, Hammy and Dale.

  9. #49
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    Congrats Hammy
    ~ Bob

  10. #50
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    Congratulations Paul, I'm sure Mr Choos had something to do with your release from the clutches of Pred!!

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