Another WG Newbie...(we should have a convention)

**Walter Wolynsky** · 04-25-2010, 08:27 AM

HI! My name is Walter...57 year old divorced male...seff-employed gardener.

I had always considered myself in reasonably good shape being that I worked outdoors...did plenty of physical work...fresh air...etc. Allergies seemed to be a fact of life with me...the watering eyes...nasal congestion. I just accepted it. Several months ago I was dealing with what I thought was a stubborn cold or flu-like symptoms. In short, I ended up in the hospital ER after uncontrolled nose bleeds which progressed to coughing up alarming amounts of blood in sputum. After the bloodwork results and respirologist referral the evidence pointed to WG. I am going in for surgery on Wednesday, April 28th to confirm this as I cannot begin treatment until a firm diagnosis is made, therefore the anxiety about getting the ball rolling. I have no doubt about it being WG as my symptoms are all classic. If there are any other WG "clients" in the British Columbia, Canada...or even Vancouver lower mainland I could communicate with...compare notes...it would be appreciated. Thanks all!

Walter

**pberggren1** · 04-25-2010, 09:14 AM

I know of 3 off the top of my head Walter.

Moyan in Vancouver

Jolanta in Mission

Germaine in Nanaimo

I hope you are doing OK right now and get an answer soon on this matter.

Take care,
Phil

**Walter Wolynsky** · 04-25-2010, 09:18 AM

Thanks Phil.I'll let you know how things turn out!

**Sangye** · 04-25-2010, 01:52 PM

Hi Walter, welcome to the group! I'm concerned that you have signs of pulmonary hemorrhage but no one is treating it yet. Has it subsided on its own? It can do that with Wegs. What kind of surgery are they doing (ie, which areas are they taking a biopsy?).

**Walter Wolynsky** · 04-26-2010, 02:22 AM

Hi Sangye. Thank you for responding. The operation consists of 3 entries through my rib cage where cameras are inserted to assist. The biopsy specimen is to be removed from the upper part of my lung.. I believe in the pleural lining. I am anxious for some form of treatment however I am in the hands of the experts at this point and time cannot move quickly enough! As far as the pulmonary hemmorhage...I no longer cough up blood.

**JanW** · 04-26-2010, 02:33 AM

Welcome, Walter, and good luck!

**Walter Wolynsky** · 04-26-2010, 02:45 AM

Thank you JanW.

**elephant** · 04-26-2010, 04:30 AM

Walter, it sound like you having a Video assisted Thoracic Surgery. I had that last year. It is painful, sorry but need to be honest. Stay on top of your pain medicines.