All About Rituximab

**elephant** · 10-07-2010, 08:01 AM

Lisamarie the lesions on your tongue ...I am wondering if it is the WG.

**DEE** · 10-07-2010, 08:22 AM

Lisamarie get them to check tongue i had lesioons on my tongue when i had my first major flare up
take care of you DEEx

**LisaMarie** · 10-07-2010, 09:40 AM

trust me they checking my tongue they took tissue ssmples for cytololgy since the cultures r negative so far....and no PE just some unknown infection but each day i gain

**jola57** · 10-07-2010, 07:40 PM

LisaMarie I hope you are going to get better everyday

**Nancy** · 10-13-2010, 03:11 PM

Has anyone heard from Lisa Marie and how she is doing?? I hope the meds that she was on worked and she is MUCH better....

**LisaMarie** · 10-14-2010, 04:07 AM

Ok guys I finally made it home ..on 1 liter o2 for now .....lungs not totaly clear...but much better...have to take bactrims DS daily for a month til I see the ID doc again....will finish my antifungals in 3 day but have to stay on my antivirials for another 8 days......will see the WG specialist Oct 28th...Pulmomary calls me the medical mystery......and want me off pred as soon as possible .....They talked to the WG specialist and he may start cellept....if that happens I will remain on bactrim ds a few days a week...i am hoping to get off o2 in a month or two.....having a near death experience has made me realize that i have a high tolerance for thing and i need to be more intune with my body and listen cause the God Lord may take me next time...they have no idea what the infection is but the antifungal seems to be working...I never been this sick and never want to again.....good news is that there appears to be no evidence of WG in my lungs....yeah

i want to thank you all for your good thoughts and prayers....I may have to do rituxen again...i hope to return to work next week... promise short hours

**Sangye** · 10-14-2010, 04:16 AM

Glad you're starting to come around, Lisa Marie. It must be very scary to be fighting off so many infections at once. How are they going to start cellcept when you still have infections?

**Jack** · 10-14-2010, 05:57 AM

Great to hear that you are making good progress Lisa Marie, but I think that returning to work next week is far too early. You need to give your poor body a bit of a break!

**elephant** · 10-14-2010, 06:06 AM

LisaMarie, glad you are feeling better. Agree with Jack, you need to rest. Can't over do it , really. Take good care of yourself, and thanks for letting us know how you are doing.