All About Rituximab

[Aunnie]

Yes, Sangye $2k out of pocket each infusion!
It just amazes me that they think money just grows on trees.
I hope it does work,but I am still nervous about it because what cames after Rituximab....

Elephant, The infusion I guess did work, but not enough to keep doing the infusions.We all want me in remission,I've had WG 3 1/2 years and it would be nice to feel better again. So I guess thats also why I'm nervous about Rituximab because I REALLY WANT IT TO WORK!!!!!!!!!!! And go back to work.

Hugs to all,Thanks for listening

Aunnie

[Sangye]

It'll work, Aunnie. The Wegs dog that's standing beside you is already looking kind of worried....

[Aunnie]

Funny Girl Sangye!!!!!

You made me laugh, which I needed ! Thanks.

I'll keep you all posted and thanks for the encouragement!

Aunnie

[elephant]

Yep Aunnie, I even saw the look on it's face.

[Aunnie]

Yahoo the Wegs dogs are singing"who let the dogs out" can you hear them?? Everybody sing!!!!!!!
LOL

Aunnie

[Lightwarrior]

Yahoo the Wegs dogs are singing"who let the dogs out" can you hear them?? Everybody sing!!!!!!!
LOL

Aunnie

LOL Aunnie, Get those dogs back up on the porch and make them take a loooooooooooooong nap.

[LisaMarie]

Yes, Sangye $2k out of pocket each infusion!
It just amazes me that they think money just grows on trees.
I hope it does work,but I am still nervous about it because what cames after Rituximab....

Elephant, The infusion I guess did work, but not enough to keep doing the infusions.We all want me in remission,I've had WG 3 1/2 years and it would be nice to feel better again. So I guess thats also why I'm nervous about Rituximab because I REALLY WANT IT TO WORK!!!!!!!!!!! And go back to work.

Hugs to all,Thanks for listening

Aunnie

Aunnie
I am doing rituxan 700 mg weekly iv for 4 weeks....this week is my last dose....it wipes me out and rest is the best medicine for me...i started imuran 100 mg after my 3rd dose of rituxan...my WG specialist hopes this combination based on the rave study will allow me to hopefully not have to take rituxan for a while again if no ever again...plan is ti live on imuran if my body allows it and be off pred in 6 months.....so i am hopefully the dog takes a long nap.....The way it was explained to me was that anything that causes stress or fatigue will cause that mean beast to wake up so staying on top on how i feel to keep him down.....sometimes i wish i had a hugh tranquiler gun to shoot him with....i am hoping to feel like a new person by october if not sooner......see the trach specialist in september to plan the next surgery to open me back up as i have decided to close up again.....atleast it is at a slowwer pace....i feel you about the cost...i was told 8000.00 per dose but negos with my hospital to have the infusions there and may only have to pay 283 per dose....still trying to work the numbers....i promise if i find the money tree the insurance and drug companies think we have i will send all of ya one.....we can rename it the WG research Tree of Knowledge..lol...gonna try to go to work...think i over did it yesterday.....have a great day yall

[LisaMarie]

ok 2 days til my 4th rituxan infusion.....not sure if the imuran is making me more tired or if it is the multi doses of rituxan....almost over slept from my nap to take my son to football practice...he took a nap with me...pretty cool when an 8 yrsold going on 9 will still snuggle on occasion with his mom.....i bruised pretty bad from the last infusion so hopefully this one will go better...plan on having a ride home again....and sleeping thru th infusion with lots of warm blackets to keep the aches away .....handling 40 mg of pred ok feel achy cause of the rituxan and was not pain free or achy free on 60 mg so i guess in 2 weeks i will know the answer to my pred taper......hope yall have a great night

[elephant]

LisaMarie it's hard to tell if it's the Imuran or RTX or WG. When I was on Imuran for two weeks I was very tired...but I developed a severe reaction to it. Like one of my docs said, you just don't know what is causing what when your on so many different drugs.
He also said if your going to get off any of your WG medicines do it one at a time that way you can monitor slowly and don't have a WG flare. I agree with that statement.

[LisaMarie]

LisaMarie it's hard to tell if it's the Imuran or RTX or WG. When I was on Imuran for two weeks I was very tired...but I developed a severe reaction to it. Like one of my docs said, you just don't know what is causing what when your on so many different drugs.
He also said if your going to get off any of your WG medicines do it one at a time that way you can monitor slowly and don't have a WG flare. I agree with that statement.

what reaction did you get from the imuran?..he is not checking labs for over 5 week?
Just curious?