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Good idea Sangye, hopefully we can get some answers.
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I think it might be a good idea if we each gave Andrew our address, phone and one or two contact people for situations like this.
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At the top of this page, Click on Community/ Member List. Scroll down and click on his name. On the left, select "Send Email." Don't leave it as a Visitor Message on his page or everyone will have access to the info.
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Thanks, done for my information, Great idea for all of us Sangye
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Sent mine, too. I put the info for 2 friends and my landlady, who lives upstairs.
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I was looking in my correspondence with moyan and i found the name of one of her Dr's, I will call and find out about a
swedish lady with Wegeners. I also have what might be her last name. I will let you know how i do.
Jolanta
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Once she said that Moyan wasn't her real name. It's a nickname from a child in the family, I think. Thank you for tracking that down, Jolanta. I hope they can at least pass on our concern to her.
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I have found moyans' real name and if I don't get anywhere with the dr., I can call the hospitals.
Jolanta
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I will email my numbers as well.
I hope Moyan is ok.
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