I still need O2 during the day if i drive or go out to the store or at home if I am going to do more than just sit around and if i am lucky enough and willing to live on the edge i go out to dinner with the family and wear it ....i still have to wear a mask when i am out and about...feb 21 can not come soon enough...Mayo here I come
Want to see a miracle? Plant a word of love heartdeep in a person's life. Nuture it with a smile and a prayer and watch what happens...Never underestimate the power of the seed!
My mojo for today.....gonna be johnny apple seed and just keep planting
Lisa Marie
The happiness of people is not necessarily to have the best of everything...but make the most of what you have!!
LIsaMarie, Mayo is waiting for you!
Having a really bad day today. It was all I could do to get up and get dressed and this took me hours. No energy at all!
It is days like today that make me wonder where all this is heading and how quickly, but I expect things won't get worse and I'll probably be reasonably OK by this evening. I was supposed to be doing a couple of small jobs today and these obviously won't happen now. I'll just sit and watch TV instead and perhaps have an hours sleep.
Damn! I hate this!
Jack: We in New England have had almost one snowstorm each week since Christmas. I can do very little to be of help to Debbie, who along with her son shovels and spreads salt and uses the snow blower. Last year I could do nothing, this year I go out and direct, (very quietly). I was celebrating yesterday being able to put on my own socks and tie my own boots due to recent weight re-gain (and loss). Feeling better I decided I could in fact scale that five foot snowbank and help my wife rake snow off the shed roof. How wrong I was and I ended up in the house, gasping until the emergency inhaler took effect. Just Wegs reminder of the new normal changes every day, every damn day. Carpe Diem whatever it brings. Guess I'm saying I can understand how you feel.
Dale
Dale know were you are coming from decided i would do genral clean up through house before i op this week . big mistake took days to recover
Jack hope things get better through the day for you take care and rest do you watch the rugby always puts me in a good mood
Aww, Jack and Dale I'm so sorry. This just stinks. I'm with you today--can barely stand long enough to brush my teeth! Some days it's harder than others to deal with the physical constraints. And some days the physical constraints are just greater. I hope you both have a surprise rebound as the day goes by.
I really hate to think this is what I'm looking forward to....
For the past two months I have felt fantastic. This is the best I've been since May '08 and I hope it continues...
First rheumy appt at SLC Vasculitis Center is tomorrow... Whahoo!
There's no reason why you should feel doomed to go through the same thing, vdub. Plenty of Weggies do just fine. I've never-- in 4.5 yrs since dx-- had 2 months where I felt even decent much less fantastic, so that bodes very well for you.
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