Those with Sinus involment

[Sangye]

I can't wait for class to begin. This is one of my electives.

[elephant]

I already got my school supplies, lunch box ( all whole foods of course ), and back pack.

[Doug]

Thank you in advance, Jan! There is so much we can learn through you, and I'm waiting as patiently as I can...[Did she post anything yet? I want to see a post! Now! Waaa!] Seriously, you are doing those of us on the forum a great deed to do this.

[DEE]

we believe you elephant WHOLE MUFFINS WHOLE CHOCOLATE ETC DEEx

[pberggren1]

whole foods are good for us.

[elephant]

Well I called Dr Langford's office , she was out and will be back in today, but spoke with the doctor on call...very nice and asked me a bunch of questions. He wanted my to make an appointment with my local ENT to take a look up my nose and see if I am having a infection or is it inflamed ?sec WG?? Can't see the ENT till next week Tuesday.
The doctor covering for Dr Langford wanted me to call my local Rheumy and get labs to see if anything is reflecting a flare, so I called and my local rhuemy is out of town till wed, but I have an appointment with her on that day anyway.
My question is should I wait till next week to get labs or ask Dr Langford to fax them to my local Rhuemy? The one who is covering my local rhuemy said she didn't know what labs to order? That is what the nurse told me.

[Sangye]

I think you should get Dr Langford to fax the orders. That way you'll have the results by the time you see your ENT and your local rheumy.

[elephant]

Thanks Sangye, I appreciate you input. Making the call right now. Just needed a little push.

[Brooke]

Sangye - I can't find that thread where you had said that Dr. Karina Keogh (my pulmonologist at Mayo in Rochester, MN) is not a wegs specialist. I called there last week because I am setting up my follow up appointment for Sept and I asked Dr. Keogh's secretary if Dr. Keogh was a Wegs specialist and she said yes. I also see an ENT there, (can't remember his name, I'll have to look it up) and she said he is also a Wegs specialist.
So, would it say on the Mayo Clinic webpage if the Doc is a specialist in Weg's? Or how would one know with out asking?

[JanW]

I think this is really a moving target Brooke. It could be that she trained under Specks, who is the wegs pulmo there. It could be that she has 30 patients but he has 100. My sense from the conference is that these docs are training people all of the time who are qualified to see wegs patients. There is also an element of "raising your hand" that gets you on the VF list - the people most likely to do this are people looking to do major research on these disesases - they always need more patients.

I'd ask her if she consults on her cases with specks - if she does that would be good enough for me.