?Limited Wegeners

[elephant]

Brooke I thought of that but no, she doesn't. I think everyone has WG, anyone I see who has a sniffle or sinus or lung problem...I thinking WG! Call the Rhuemy now, don't wait a second. Already did this to my dad. He is ok.....I kinda freaked out because we had four maxillary surgerie on the same side. His blood work came out negative. I know that doesn't mean much..but my dad was ok with that.

[Sangye]

I'm always on Wegs alert, too. I have a friend who's had increasing pain and stiffness in multiple joints for months. That's how Wegs started for me, but I can't convince her to get checked for anything, much less Wegs. She's in complete denial and certain of her invincibility. I've stopped mentioning it.

[pberggren1]

I know what you mean Sangye about your friend. I've had a couple like that also and stopped mentioning it as well.

Oh Jack! If it's not one thing it's the other!

[Jack]

It must be my New Normal.

This disease is crap isn't it?

[Sangye]

This disease is crap isn't it?

YES. I think the vote will be unanimous.

[pberggren1]

I don't think crap even begins to desribe it.

[elephant]

I was told that I was in remission June 2010, but I still have minor stuff going on...itchy ears, feeling like I am talking in my head....but if I sniffle then it goes away, and the little red dots in June and August.
I think Remission means:
1. No lung nodules
2.No joint pain
3. No fevers
4. No coughing or blowing blood
5. No fatigue/severe weakness
6. Acceptable labs values..PR3, creatinine,

[Sangye]

That's so funny, Elephant. I was JUST thinking about that today. I think Dr Seo has been trying to get me to understand that for a few months now-- that even in remission there will still be some annoying symptoms or little things that ebb and flow. I guess I had a picture in my head that by the time we got the dog to sleep, I wouldn't have any symptoms. To be fair, a lot of my symptoms are due to damage. It's only becoming apparent now.

I do have #5, fatigue and severe weakness, though. I think it's damage to my adrenals but time will tell.

[Brooke]

If that is what that means, I think I am in remission too! Although I still had a lot of inflammation in the airways during my last bronchoscopy after they tried to laser and balloon open the scar tissue. Hmmm.

[elephant]

Sangye, hoping in time this fatigue goes away. You need a break!

Brooke- I still get on/off inflammation in my sinuses secondary to infections and irritants....because my left max is damaged. What does your doc think re: inflammation in your airways?