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[coffeelover]

Phil,

I am so happy to hear you taking control of your medical care. You are so smart!
Lisa

[pberggren1]

Lisa,

We all have to become as knowledgable as possible about this disease we have and all the different things we might encounter. I have learned quite a bit about WG and the medical system and many other things just from the various people on this site. We have to take control of our medical care. We just cant walk into our doc appt and act like a zombie and just accept what they say. We have to be proactive and gain as much knowledge as we can to question our docs. I know there are many things I don't know yet about WG and the treatment of WG but I do know that every time I log on this site I learn something new. I challenge all Weggies to take charge and be proactive.

[elephant]

I practically have to beg my doctors for a CT scan. My lung nodule was very sneaky! So I want one done soon. The last CT scan I had was August 2009.

[Sangye]

We just cant walk into our doc appt and act like a zombie and just accept what they say.

That's right. We might be "undead" but we're not zombies.

[pberggren1]

My last CT was June of 2009 to to determine WG in lungs or infection.

[Lightwarrior]

Just back from the ER, passed a kidney stone, actually two. Feel much better, needed the ER for hydration and pain control. RBC's in my urine were 106, normally they are under 20 when I pass a stone, ER doc said my bladder was visualized in the CT and no cystitis. I still worry about that, unusual for me to have such a high RBC in my urine.

[Sangye]

Yikes-- what was their explanation for all the blood?

[elephant]

Lightwarrior, sounds like your having all the fun now. Hope you start to feel better. I wonder if the blood is from all the irritation , passing that stupid kidney stone!

[Lightwarrior]

Yikes-- what was their explanation for all the blood?

kidney stones

[Col 23]

Hi Lightwarrior and everyone
Sorry you have been going through so much Lightwarrior. Im glad your home at least and not trying to work through all this. Keep us updated on how you are doing.
Thanks for all the info posted on here. I have a CT Scan, bone density and bloods again at the end of April. Just wondering if you think Im having a flare at the moment. I have left eye that is feeling like someone punched me in the eye and then it goes to mild irritation. I have steriod drops for that and I upped them from 3-4 times aday. I have also woken up early in the morning with pain in left chest region. Doesnt appear to be heart. I have had it twice today around the breast area. Lumps appear to be back in breast area again. All my appointments are scheduled for the end of April. I have just survived 1week on tapered pred from 30 to 25mg. Also oral methotrexate 25mg continues. I also have marked anisocytosis and Mild neutrophilia. I think that means anemia. Any thoughts.
cheers Col 23