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Thread: New Flair

  1. #81
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    I had tons of bright red spots on my legs when I got dx'ed. They've been a good indicator of Wegs activity for me, actually. I usually don't get them-- or maybe just a couple small ones-- but if they reappear in larger numbers I know it's Wegs. That sign has never failed me. We biopsied several in the beginning and they were consistent with Wegs.

    I also have several large painful bumps on my shins that have been there for almost 4 years--started a few months after dx. I think they're clearly erythema nodosum, but none of my docs has officially dx'ed it as that or anything else. Two of them turned into Wegs ulcers awhile back--extremely painful and each took about 9 months to heal. They don't cause me any problems now unless I'm seeing a new doc (eg in the ER). I have to warn them not to push on them to test for edema or I'll go through the roof.

  2. #82
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    Col, are you close to this doc?

    Neil Brodie
    9 Colin Street
    West Perth, WA 6005
    Phone: 08 9321 1964

  3. #83
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    About 35minutes away. Does he know about wegs? Can arrange appointment when I get back as I have to go into west perth for another app.
    thanks heaps
    Col 23

  4. #84
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    I don't know hiim, but he does the same chiropractic technique as I do. I found his name through an international listing. I wouldn't expect any doc other than a Wegs specialist to know what Wegs is. You'll have to educate him. I'd be happy to exchange emails with him to speed that along for you. I wouldn't discuss your case in particular, though.

  5. #85
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    Thanks I will go ahead with with making an appointment towards the end of April when I get back from Darwin. If your able to exchange emails and speed that up it would be helpful.
    Appreciate your help
    Hope your resting and feeling okay
    Cheers Col 23

  6. #86
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    Col, can you call him and get an email address? It is listed on the website.

  7. #87
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    Thanks SangyeI wil be back in Perth on the 26th of April and will organise everything then.
    I will get through my appointments first I have about 5 to attend in a week when I get back and then I will start
    working on the Chiro. Great to know I have the support. If I can arrange anything in between I will, so will get back to you.
    Once again thanks heaps.
    Col 23

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