User Tag List

Likes Likes:  0
Page 2 of 9 FirstFirst 1234 ... LastLast
Results 11 to 20 of 87

Thread: New Flair

  1. #11
    Join Date
    Mar 2009
    Location
    Swift Current, Saskatchewan, Canada
    Posts
    6,076
    Post Thanks / Like
    Mentioned
    21 Post(s)
    Tagged
    0 Thread(s)

    Default

    The sad reallity is that it is not a game. It is our lives they are dealing with!

  2. #12
    Doug Guest

    Default

    I always think of W. Edwards Deming, the Quality Guru, who wrote of the people who run this world (ostensibly), certainly the people determining the limits of health insurance we run up against: "How can they do their jobs. They don't know what their jobs are."

    His point was that managers need to think beyond the current quarter, even the current year, and take the longest term possible look at the effects of their decisions. Often, perhaps usually. Just saying!

    For example, if denying our friend the time and care she needs off to heal, with no negative consequences to her, no loss of job, no loss of benefits, no decrease of salary [breathless pause....OK jump back in!] means she ends up losing ground in the course of healing, has to take expensive medications previously denied when they might have done a good job, ends up with disabling and preventable effects, up to and including possible death, then they failed at their jobs.

    Sorry for the complexity ofr that sentence. In short: "Penny wise, pound foolish!"

    Bastards!
    Last edited by Doug; 03-28-2010 at 03:44 PM.

  3. #13
    Join Date
    Apr 2009
    Location
    Edmonton, AB, Canada
    Posts
    163
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Don't be to hard on yourself for not going to the doctors sooner. I did this myself and did take quite a few steps backwards. But I did learn from that. I cannot even imagine working in your condition. It is very sad that you have to play the insurance game, with all the other problems from being ill you have to worry about the insurance part. I live in Alberta, Canada and cannot tell you how thankful I am for the coverage I have. I have not been able to work since November of 2008. I only get 70% of my wage but I do have medical insurance. My thoughts are with you and hope you are feeling better soon.

  4. #14
    Join Date
    Jan 2010
    Location
    Yuma, Arizona 85364
    Posts
    952
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Just had abdominal CT, don't know why I had to drink contrast??? Eyes still swollen, labs suck. wbc 2.9 rbc 2.61, Hgb 9.9, hct 27.4 segs 94. Urine has 46 red cells with moderate urine blood. BUN/CR normal. Rheumy says stop cytoxan he thinks it is reaction to cytoxan and not flare, massive diarrhea after stupid contrast. I'm going home to rest, and we will recheck labs in a week. Is this reasonable or am I freaking out?

  5. #15
    Join Date
    Jan 2010
    Location
    Hoboken, NJ
    Posts
    1,425
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Lightwarrior -- I'll leave it to others to discuss labs but I just wanted to point out (as I always do) that I saw Dr. Merkel of Boston University saying that any WG patient should tell their radiologist before taking contrast. He said that contrast for WGs is one of his pet peeves (and so many get it done for routine chest CTs, for instance), because you simply don't need to be putting any extraneous stuff into your body when you have this crazy disease. I won't take it for chest CTs, but never had it offered for any others.

    Why did you have to get an abdominal CT?

  6. #16
    Join Date
    Jan 2010
    Location
    Yuma, Arizona 85364
    Posts
    952
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Intense back pain, kidneys sore. Oral contrast, yuch, now I have the massive runs.

  7. #17
    Join Date
    Sep 2008
    Location
    Birmingham, England
    Posts
    2,801
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I was only allowed the contrast test if I was on a saline drip and had a course of some sort of detox pill. Not sure what it was called, but they give it to overdose patients (had some nurses asking if I had done anything silly. ).

  8. #18
    Join Date
    Apr 2009
    Location
    South Carolina
    Posts
    4,273
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    Lightwarrior, get some rest and have you started with the proceedings yet for the WG specialist? Has your local Rhuemy called someone like Carol Langford at cleveland clinic to discuss your case? I don't want to nag....I know you are so tired and tired of this crap you are dealing with. Just want you to be taken care of and don't won't you worse. Today just relax and rest. Tomorrow is a new day.

  9. #19
    Join Date
    Jan 2010
    Location
    Hoboken, NJ
    Posts
    1,425
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I agree with elephant. Hope everything will be ok!

  10. #20
    Join Date
    Nov 2008
    Location
    Maryland, USA
    Posts
    10,836
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default

    I'm so sorry you're feeling like this, Lightwarrior. I can hear the weariness, exasperation and frustration in your words. It does look like the ctx is tanking your WBCs too much. I don't see how he can say it's definitely not Wegs, though. So much blood in your urine is not okay. Because your Wegs symptoms are still so bad, it does make me wonder if it's BOTH ctx toxicity and Wegs activity. That's what ctx does to me-- overly toxic but doesn't control the Wegs, either.

    I'm with Elephant about calling a Wegs doc in asap.

    Also, do you have someone else who's able to post updates in case you get hospitalized or are too wiped out to post?

Page 2 of 9 FirstFirst 1234 ... LastLast

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •