New Flair

[elephant]

OHHH the nagger is here ...I agree with Jack. You should be home in bed resting. You are flaring with WG and need to rest. I am a RN, but I learned my lesson. Lightwarrior...I know you are very intelligent...but you have to take care of your self. Can you do short term disability? You need to see Carol Langford and get her to look at you physically. I know you have people there who love you and would take you there, I sense that. It will all work out...need to take care of yourself first and your family will be fine. Let others take care of you, I know that it is hard..cause you are use to taking care of others.

[Sangye]

I agree with Elephant that it's best to see Dr Langford in person.

[Lightwarrior]

Can you do short term disability?

I have short term and long term as a benefit, the problem is that it does not cover insurance. I have carefully guarded my extended illness and time off benefits to keep a month in the bank, if I go over that month disability would kick in at 3/4 my normal salary (okay) but my cobra would be $1496.00 a month for insurance that isn't paid if I'm out of my eib/time off. That would be impossible, which would mean a lapse in insurance, inability to get meds, etc. etc. I am not working very hard, and have the option of a sleep room if I need it here or my office has room for a recliner. I have to guard and build my time off so I play the Insurance game correctly.

[DEE]

sorry to hear things not been so good lightwarrior
like you i sometimes use the word im fine
got bloods results back today rang wg consult to tell him
he didnt ring back so took it no news good news even though from looking at them even i knew things not quite as usual
BUT he did ring i have to have bloods done again first thing tomorrow
low platlets etc im on ctx and high preds again thought things where looking up
please take care of you i understand about work i told mine id be of for two weeks back in jan when i had kidney biopsy
still not back wg consult and own gp keep telling me no because your not stable enough i work in schools and get full pay for the first six months
hope u are feeling better soon DEE x

[elephant]

Yea, I agree with you Lightwarrior...you don't want to be homeless. So glad you have the option to sleep. I totally understand the insurance game. Get to Carol Langford please...you will understand why when you go.....you feel that you were really seen and heard. It is worth the trip! Praying for you to get better soon.

[Sangye]

It sickens me (more) to know that you can't take adequate time off because of stupid insurance issues, Lightwarrior. This is heartless and wrong. I'm so sorry---

[Lightwarrior]

It sickens me (more) to know that you can't take adequate time off because of stupid insurance issues, Lightwarrior. This is heartless and wrong. I'm so sorry---

Not just for us, but for all of the others who have already lost the insurance game... it is why we need to stay strong and advocate for health care reform. I consider myself lucky that I know the game and can still manipulate it, there are so many others who can't. Thank you for always thinking with your heart.

[pberggren1]

The sad reallity is that it is not a game. It is our lives they are dealing with!

[Doug]

I always think of W. Edwards Deming, the Quality Guru, who wrote of the people who run this world (ostensibly), certainly the people determining the limits of health insurance we run up against: "How can they do their jobs. They don't know what their jobs are."

His point was that managers need to think beyond the current quarter, even the current year, and take the longest term possible look at the effects of their decisions. Often, perhaps usually. Just saying!

For example, if denying our friend the time and care she needs off to heal, with no negative consequences to her, no loss of job, no loss of benefits, no decrease of salary [breathless pause....OK jump back in!] means she ends up losing ground in the course of healing, has to take expensive medications previously denied when they might have done a good job, ends up with disabling and preventable effects, up to and including possible death, then they failed at their jobs.

Sorry for the complexity ofr that sentence. In short: "Penny wise, pound foolish!"

Bastards!

[Cindy M]

Don't be to hard on yourself for not going to the doctors sooner. I did this myself and did take quite a few steps backwards. But I did learn from that. I cannot even imagine working in your condition. It is very sad that you have to play the insurance game, with all the other problems from being ill you have to worry about the insurance part. I live in Alberta, Canada and cannot tell you how thankful I am for the coverage I have. I have not been able to work since November of 2008. I only get 70% of my wage but I do have medical insurance. My thoughts are with you and hope you are feeling better soon.