Hello everyone..
Im in Darwin, staying with my daughter for a few weeks. The week before I went I was checked by Rheumie and she lower my dose of Pred from 30 to 25 mg. I had been slowly tapering from 80mg since January2010.
After a week I woke up with alot of head pain on left side of face that was unbearable. Went to Royal Darwin Hospital, bloods done again, mix up with them,told I had no RBC and then they discovered my bloods had got mixed up with with someone elses as they were about to inject protein and blah blah. The Doc was on it anyway and was doing a double check as they were about to draw more blood and add a cranula she advised of the mix up. What a relief. Anyway the ESR was good. After consult with Royal Perth Hospital they decided I needed to go back on 30mg and review in 2 weeks. I was extremely fatigued prior to the head pain and my nose was starting to drip again. Sometimes this whole thing confuses the hell out of me. Im still on 25mg of Methotrexate and taking pain relief, Panadol Osti for RA. My knees are swollen and so are my ankles and Im now gained about 9kilos and have a moon face. I have given up putting on makeup as I sweat it off and have to put steriod drops in my eyes 3 times a day and tears 3 times a day. But hey I think Im doing okay. Just really really really disapointed that I had to go up again on the Pred instead of going down again. Ive started having a spa and swimming each day I think this may be helping the RA.
Anyone else had head pain? Also for some reason I find diet coke a must if I need to go to shops or need some energy. I have also spoken to another WG person who advised she was really addicted to it and believed it also gave her the energy she needed to get through some tasks for the day. Anybody else out know about this? Cheers Col 23
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