New WG patient

[Sangye]

I love that about our group. You can bring anything to the table and it's always met with kindness and understanding.

[moyan]

We are not a judgemental group, were all in this together and Hey we have it tough and we don't need any more grief! I love helping people and also I am learning from everyone on this forum. Today I am not 100 % because I am still recovering from my surgery, so I still enjoy just reading every one's comments.

2 days gone, elephant. For once it may be right to look back and be grateful those 2 days are over LOL

[elephant]

Thanks Moyan...hope to come back full speed so I can be up to speed here on this forum.

[Sangye]

That's right-- we don't want you to lose your nagging muscles, after all. We're only looking out for you.

[DEE]

thats right sangye if you and elephant stop nagging us about things were would be
your ADVICE has on some given me the kick up the........side some days to stop feeling sorry for myself and get things sorted so please dont either of you stop NAGGING
DEE x

[Jack]

I love that about our group. You can bring anything to the table and it's always met with kindness and understanding.

Wegener's teaches us that there are more important things in life than bickering and passing judgment on others. Most of the trivia in life is not that important anyway and certainly not worth getting worked up about.

[Sangye]

Ain't that the truth.

[JanW]

Sure, it's not worth getting worked up about NOW, after WG! ;-).

[germaine]

There is a Wegener's support group in Vancouver with a number of members. I am not sure which doctor's they are seeing, but they should be able to help you. If you can't find that group, let me know and I will forward the right email addresses to you.

[germaine]

Does anyone else have soft tissue pain? I have joint pain (hips, ankles, knees, and sometimes shoulders, wrists and elbows) but i am also having muscle and soft tissue pain. Calves, thighs, ect... Does this happen to any of you, and how do you deal with it?

I get pain in various of those areas. I find regular walking as far as comfortable and some physiotherapy has helped a lot. I also took Sangye's advice about being sure to get enough rest to do the recovery. So far so good.