WG & Its effects on my Lungs & what has it done to yours

[Col 23]

Hi Jan
Thanks for getting back to me on that one. Im having a total rest day before I go to the docs today. Just rang the Rhemie she wants to see me day B4 I to to Darwin next week. Hopefully she might reduce the Pred again. It seems we all have very different presenting symptoms with WG, no wonder we all get misdiagnosed initially. As its multisystemic it appears it can attack anywhere anytime. How are you going wiith your WG?
cheers Col 23

[Jack]

Alternate days is a preventative dose. Every day is a treatment dose.

Some Weggies find Bactrim helps control their Wegs-- usually those with sinus and upper respiratory involvement. They might take it daily or alternate days.

I have taken Bactrim (co-trimoxazole) daily for many years with good results.

[JanW]

I'm doing well. Having surgery for subglottic stenosis tomorrow. Will start on medication afterwards.

[elephant]

Jan, I will say a prayer for you. You will be glad when it is all over and you will be able to breathe better. You will do great!

[JanW]

Thanks so much, elephant! I'm both nervous and very much looking forward to it -- it's weird!

[Sangye]

Jan, I understand the nervous-apprehension-excitement thing! That's how I've felt about doing another round of rtx. Kind of like "Oh man, do I have to do this?" and "Can I start yet?" all at once.

How wonderful to know that you're in the most capable hands. I'm sure that brings you great comfort. I wish I could be there to see you take your first big breath!!! Take good care and let us know how everything went.

[Col 23]

Hi Jan
All the best for the op.
Col 23

[Col 23]

Just wanted to say Hi Jack and ask how your doing?
Col 23

[JanW]

Thanks a lot. I'll let you guys all know how I'm doing tomorrow (depending on internet access) or Friday after I get out. Looking forward to breathing better...I almost cannot imagine it!

[Jack]

Just wanted to say Hi Jack and ask how your doing?
Col 23

I'm good thanks.
I'm spending the week staying with my sister and she is always good company and cooks very well too! I'm eating more than I have done for ages. My legs are a bit stiff and painful, but otherwise most of my annoying little problems are laying low.
Hope you are making some progress with your own problems.