Hi all,

I've recently been diagnosed with GPA. I'm still in an active state, recently completed 2 rounds of infusion therapy with Truxima. Still trying to learn about GPA and how to deal with it the best I can. Like many others have posted, my energy level gets used up much more quickly than I'd like. I am also dealing with ongoing headaches, head congestion and ear pain. Prior to the diagnosis I had severe ear infections and pain in both ears and sudden bilateral severe/profound hearing loss. While some of my hearing has returned, it's still in flux so I need to wait for it to stabilize before getting hearing aids. I'm in southeast New England in the US.

Thanks in advance foray information and feedback!
Razie