Hello, you guys.
Had my 5th successful Subglottic Stenosis surgery yesterday. HOWEVER! It appears I have scar tissue (stenosis) in my left bronchial tube opening.

My ENT didn't touch it, but said we had to keep an eye on it. It looked 'healthy'/no nodules or inflammation, just scar tissue banding. I have since rallied my other doctors and will be switching from Methotrexate to Imuran to make sure there is no more spread as well as a CT to make sure the rest of my lung looks good. JUST WHEN I THOUGHT I HAD THIS DIALED lol

Have any of you lived with this form of stenosis? I am still active (ride my bike and hike and all that fun stuff) so I am hoping that we can leave it/get it shot with steroids and dilate if we have to. Never had pneumonia or other lung illnesses. I hear this is pretty rare in our community