User Tag List

Likes Likes:  5
Results 1 to 5 of 5

Thread: Bronchial Tube Stenosis!

  1. #1
    Join Date
    Oct 2020
    Location
    Western USA
    Posts
    4
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Bronchial Tube Stenosis!

    Hello, you guys.
    Had my 5th successful Subglottic Stenosis surgery yesterday. HOWEVER! It appears I have scar tissue (stenosis) in my left bronchial tube opening.

    My ENT didn't touch it, but said we had to keep an eye on it. It looked 'healthy'/no nodules or inflammation, just scar tissue banding. I have since rallied my other doctors and will be switching from Methotrexate to Imuran to make sure there is no more spread as well as a CT to make sure the rest of my lung looks good. JUST WHEN I THOUGHT I HAD THIS DIALED lol

    Have any of you lived with this form of stenosis? I am still active (ride my bike and hike and all that fun stuff) so I am hoping that we can leave it/get it shot with steroids and dilate if we have to. Never had pneumonia or other lung illnesses. I hear this is pretty rare in our community

  2. #2
    Join Date
    Oct 2011
    Location
    near Phx, AZ
    Posts
    1,804
    Post Thanks / Like
    Mentioned
    7 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Bronchial Tube Stenosis!

    Don't know what you dialed in, but it's so characteristic of 'us' to look good, feel well, then collapse. Just finished a simultaneous attack of GPA, Valley Fever, and Covid. Did NOT test positive for Covid, GPA scores were high but not bad, and had symptoms of VF...OK, so don't dial in things, I thought I was just tired...have a good one!
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


  3. Likes Dev liked this post
  4. #3
    Join Date
    Mar 2012
    Location
    Suburban Columbus, Ohio, USA
    Posts
    2,323
    Post Thanks / Like
    Mentioned
    19 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Bronchial Tube Stenosis!

    @Dirty Don

    Sounds like you’ve had a rough summer. Hope you’re back to “normal” soon!! 😎
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  5. Likes drz, Dev, Masha liked this post
  6. #4
    Join Date
    Oct 2020
    Location
    Western USA
    Posts
    4
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Bronchial Tube Stenosis!

    Oh, Don! I hope you are feeling better, that sounds so rough.
    That is a good point, I suppose. Set backs are all apart of this illness. I am just scared of this new development, but I hope I can live with it/treat it if I have to.

    Like you say, we don't have a choice but to ride it out! No certainty with this illness.

  7. Likes Dirty Don liked this post
  8. #5
    Join Date
    Oct 2020
    Location
    Western USA
    Posts
    4
    Post Thanks / Like
    Mentioned
    0 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Bronchial Tube Stenosis!

    Update on this, for anyone who comes across this looking for help!
    I was able to get my bronchoscopy with a dilation down at Stanford with the Pulm. Intervention specialist Dr. Brian Shaller. The surgery went well (9/26), and I seem to be healing well from it.
    I will be getting a second one in December. Dr. said that it isnt about getting the opening back to where it was, but to get it to where it will be open enough for me to function. I am hopeful that the close succession of surgeries will stabilize the stenosis in this area for a longer period of time. While it doesnt fix it, I am grateful and hopeful this minor surgery can maintain my airway enough for me to still run around and bike & hike
    Also, it turns out that I have always had this stenosis (per CT scan from 2018), but it got set off by something (rheum. suspects Covid cough). Hope everyone is doing well ~

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •