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Thread: Losing patience / covid

  1. #1
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    Default Losing patience / covid

    Sorry, it's been a while since I've posted on this forum. I went through a period where it was depressing to see all of this information. But I also went through a period where I believe this forum saved my life.
    Just wanted to vent a little here, I am getting frustrated. About November of 2021 I begin to feel very very tired again and started having sinus issues again. My ANCA had been Sky High for a few years but I felt good and all of my other labs were normal. But I've spent all spring and summer feeling like crap. I'm nauseated exhausted dizzy daily headaches Etc. oh and who can forget the giant mucus blobs are back. It is beginning to weigh heavy on my mind.
    I had covid-19 in January despite the vaccines. I've heard so much about the side effects of the vaccines and of covid itself that it just makes me wonder if having the disease and the vaccines ended up flaring up some dormant side of this disease.

    Sent from my SM-A102U using Tapatalk

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  3. #2
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    Default Re: Losing patience / covid

    Welcome back @greenjeep!

    Getting Covid under control with vaccines that don’t trigger wegs flares will be a great blessing. Fortunately for me, the Pfizer vaccine has produced nothing beyond injection site soreness and flu-like symptoms for 18-24 hours following the injection. Since I get Rituximab to keep wegs under control, the vaccine doesn’t produce many Covid antibodies. Still, my wegs doc recommends the vaccine as long as it’s doing no other harm.

    I did get Evusheld in February and will get a second dose in a couple weeks. Unfortunately, there’s no test to see if it works beyond not getting Covid. I haven’t gotten Covid yet, so I guess it’s working.

    My wife and I have had a low profile lifestyle since early 2020. It’s boring and certainly not the retirement we were hoping for. I don’t go to the Y for exercise much now. During the winter, I’ll walk the indoor track there with a mask on if the neighborhood bike/bike trail is slippery.

    Anyway, I hope you get the relief you’re looking for.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  5. #3
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    Default Re: Losing patience / covid

    Quote Originally Posted by Pete View Post
    Welcome back @greenjeep!

    Since I get Rituximab to keep wegs under control, the vaccine doesn’t produce many Covid antibodies. Still, my wegs doc recommends the vaccine as long as it’s doing no other harm.
    Over here in Finland the recommendation is to get the vaccine at the latest 1 month before the RTX infusion, or 6 months after the infusion. Had my fouth vaccinne in May. I guess we are now being offered a fifth vaccine, but just had my RTX so will need to wait.

    Had recently my wedding party with 100 people, was pretty sure I'd get Covid as its still around, but guess I avoided it. No one from my family has still had it (although my daughter had a rough case of the flu when covid was starting, but there were no tests available back then).
    Diagnosed 08/2013, Relapse 07/2014, Relapse 5/2017 (although early signs of it from 12/2016)

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    Default Re: Losing patience / covid

    I had Evusheld months ago and am due to get another dose of it next week. I still get my vaccine boosters but Iím sure the Evusheld protected me much better.

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