I have been put on Cyclophosphamide (Cytoxan) pill to help my hearing loss after a "supposedly" ineffective Rituximab infusion (two infusions 2 weeks apart) in March/April 2021.

Drs think another Rituximab infusion would take too long to help with hearing impact since it takes 6-8 weeks to kick in and I had a sharp hearing loss on my left ear a few weeks ago.

Anyone who has been on Cytoxan who cares to share their experience with this drug. Among the possible side effects is bladder cancer so I'm a bit concerned.
I am particularly interested in answers to the following questions:
  • what is the treatment plan they gave you? was it the infusion or the pill? If the pill, what dose and for how long?
  • how do they know when to stop the Cytoxan?
  • do/did you take prednisone with it? If so, how much and are they tapering it?
  • they told me to drink lots of water. how many ounces of water are enough to flush this drug out of your system?


Thanks!
Jeannette