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Thread: Dr. Appt. - Vaccine did not work (no antibodies)

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    Default Dr. Appt. - Vaccine did not work (no antibodies)

    Went to the Doctor last week told if you are on Rituximab good chance the vaccine did not produce the (antibodies). they took multiple blood samples and I got the results yesterday. My doctor is in a study about this - 85% of people on this drug the vaccine did not work. Not sure what the next step is. Wait and see - I guess the mask will never come off.

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    Default Re: Dr. Appt. - Vaccine did not work (no antibodies)

    There is a lesser chance of producing the amount of antibodies needed. According to Mayo docs, the estimate of effectiveness is about 80-85% compared to a normal situation. I've had both shots, no reactions or symptoms and no Covid...and I just had a round of RTX after the C shots. Be wary, but get all the info needed for you. Best to you.
    Knowing how to think empowers you far beyond those who only know what to think. -NdT


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    Default Re: Dr. Appt. - Vaccine did not work (no antibodies)

    No doctor has been willing to test me for antibodies since they say there is no point. If they aren't present, then what since there is no next step being recommended at this time. Even if they are present they have no idea how long they will last or how much protection they would provide. They just recommend I continue to self-quarantine.

    I got my RTX after the vaccination. Doctors believe the Covid-19 pushed my smoldering GPA into an active flare.
    Knowledge is power! Wisdom is using it to make good decisions!

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    Default Re: Dr. Appt. - Vaccine did not work (no antibodies)

    Quote Originally Posted by drz View Post
    They just recommend I continue to self-quarantine. I got my RTX after the vaccination. Doctors believe the Covid-19 pushed my smoldering GPA into an active flare.
    @drz - from your experience, are you saying that getting a C-19 vac actually triggered a flare? I am contemplating getting C-19 between 2 RTX and wondering if its worth taking or not...

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    Default Re: Dr. Appt. - Vaccine did not work (no antibodies)

    This is the official guidance (from the American College of Rheumatology) that all of the doctors are going with. Dr. Villa Forte at the Cleveland Clinic as well as my local rheumatologist both provided, verbatim, the same recommendation:

    "Assuming that patient's COVID-19 risk is low or is able to be mitigated by preventive health measures (e.g., self-isolation), schedule vaccination so that the vaccine series is initiated approximately 4weeks prior to next scheduled rituximab cycle; after vaccination, delay RTX 2-4 weeks after final vaccine dose, if disease activity allows"

    Last Updated 4/28/2021: https://www.rheumatology.org/Portals...es-Summary.pdf

    The Rabbit Hole I used to find this was on the Vasculitis Foundation website: https://www.vasculitisfoundation.org...irus-covid-19/

    I had Pfizer #2 on Sat, June 5th, I was in terrible shape June 6th (101 degree fever: I haven't had a fever since before being diagnosed). Fever broke late that evening. From what I've been told, this is a good sign the spike proteins in the vaccine did their job. Will my next RTX in early July wipe it out? Probably, but this isn't going anywhere so I'm taking protective measures like losing weight, physically distancing, meditating, and praying.

    Good Luck to all.

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    Default Re: Dr. Appt. - Vaccine did not work (no antibodies)

    Quote Originally Posted by shankxonline View Post
    @drz - from your experience, are you saying that getting a C-19 vac actually triggered a flare? I am contemplating getting C-19 between 2 RTX and wondering if its worth taking or not...
    My doctors believe it did. I was smoldering before though so it didn't take much to push me into a flare. I would still do it again even though I am uncertain the vaccination gave me much protection given my suppressed immune system.
    Knowledge is power! Wisdom is using it to make good decisions!

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    Default Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I've not been on RTX since before my kidney transplant just over 2 years ago, but I am on daily Adoport (Tacrolimus) and Myfortic (Mycophenolate).
    I received my antibody result today and did not produce any response (IgG and IgM).
    Diagnosed April 1995

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    Default Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I was able to get an antibody test through Labcorp directly. I think they have an "in-house" doctor who writes the script. You can set it up directly on their website. I thought it was useful for me. As immunized people, many of us are probably generally at higher risk of a worse outcome. However, my thought was that if my antibody levels were normal for a non-immunocompromised person, then what reason would I have to think that the vaccine was less effective for me? While I would still be more cautious than most since I believe I would still be at higher risk of a bad outcome compared to non-immunocompromised recipients, at least I felt that I could check that box and engage with the world a bit more. In the end, my antibody results came back pretty low, I am more focused on being cautious and looking for trials that would enable me to get a third dose.

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    Default Re: Dr. Appt. - Vaccine did not work (no antibodies)

    I have been on mycophenolate for a while now, 1000mg / day, and had two shots of the Pfizer.
    I had my antibodies tested with the Roche semi-quantitative RBD antibodies test, and it came back as 183.
    From what I can gather that is about 10 times lower than would be expected in someone who is not immunocompromised.

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    Default Re: Dr. Appt. - Vaccine did not work (no antibodies)

    Has anyone looked into getting a third Covid vaccine dose? I've read in newspaper articles of people getting them, but not sure exactly how they are able to.

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