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Re: Dr. Appt. - Vaccine did not work (no antibodies)
Quick solution. I went to Etsy and bought a cheap cloth mask that says IMMUNE COMPROMISED. You still have to wear a safe mask under it. Bought my husband a pin that says I LOVE A PERSON WITH AUTOIMMUNE DISEASE. If anyone questions you be ready with handouts about not Wegener’s but Granulomatosis. I have found the name not only shuts them up but intimidates them. If confronted with mile long information, most people will run the other way.
I just heard that a patient was coming out of a medical center for treating breast cancer and was attacked for her mask. What on earth has happened to our world.
I am having someone come to my home on Monday to test to see if I have any T cells. Thanks to this site I got the info. Even though I am vaccinated, since it didn’t work, my doctors said to live as though I am not. Covid deaths in NC and SC are barely there. But I do know that when they say that a tiny per cent is still vulnerable they are talking about me.
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Re: Dr. Appt. - Vaccine did not work (no antibodies)
Good morning to all. I got a 3rd shot. My last Rituxan was December 2020. I’m on 4mg prednisone a day. 12.5 Methotrexate one dose a week. I got may first Mod shot end of March. Second Mod shot end of April. Had test for antibodies July. It was negative. I then got a 3rd Mod shot. Bigger response to shot. Arm really gutted for 2 days. One day lots of muscle pains. 3rd after shot feel normal. I’ll try to get antibodies test end of Sept. I’m glad people are to where masks in doors again. Be safe all.
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Re: Dr. Appt. - Vaccine did not work (no antibodies)
Originally Posted by
Tahoerich
Good morning to all. I got a 3rd shot. My last Rituxan was December 2020. I’m on 4mg prednisone a day. 12.5 Methotrexate one dose a week. I got may first Mod shot end of March. Second Mod shot end of April. Had test for antibodies July. It was negative. I then got a 3rd Mod shot. Bigger response to shot. Arm really gutted for 2 days. One day lots of muscle pains. 3rd after shot feel normal. I’ll try to get antibodies test end of Sept. I’m glad people are to where masks in doors again. Be safe all.
Your story is very similar to mine. My rheumatologist is looking into getting a 3rd shot for me. How did you get one?
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Re: Dr. Appt. - Vaccine did not work (no antibodies)
Hi not trying to do anything illegally. 1st and 2nd shots where threw the local government. My D said go ahead with a 3rd shot. You can try any store that’s doing coronavirus shots.
Last edited by Tahoerich; 07-30-2021 at 10:58 AM.
Reason: Safer
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Re: Dr. Appt. - Vaccine did not work (no antibodies)
It seems that most in this forum are on Rituxan. I am fortunate enough to be on just maintenance Methotrexate. Has anyone who is just on methotrexate and had the 2 dose Covid shot also had Covid antibody testing after vaccination? And if so, what were the results, and did you temporarily discontinue methotrexate (for 1-2 weeks) before and /or after the vaccine shots?
Last edited by novastorm; 07-31-2021 at 06:39 AM.
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Re: Dr. Appt. - Vaccine did not work (no antibodies)
Do you know if the study is published? I have multiple reasons I do not plan to take the shot yet, but would like to see the data. One fear is the exacerbation of the condition the other is no antibodies. I'm definitely not trying to diminish CVD, but i fear the shot with this condition more than the virus. I am so sensitive to medications and there isn't a lot data for this and our condition. Thank you for posting this... I try to make the best decisions based on what information is available.
Thank you
Jason
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Re: Dr. Appt. - Vaccine did not work (no antibodies)
I got vaccine plus 2 boosters. I had a breakthrough covid case between the 2 boosters. After the second booster I had a dramatic sudden relapse with kidney failure but looking back I think there were early symptoms before the last booster. Since I got out of the hospital I've been tested before beginning rtx. No antibodies to anything EXCEPT COVID. I got revaccinated for pneumonia, etc. and still no antibodies. But yes for coronavirus. Although that is the old strain probably. Everything is so weird now isn't it? I guess I just have to laugh (while I'm getting my subcutaneous injections of antibody therapy).
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Re: Dr. Appt. - Vaccine did not work (no antibodies) Follow-Up
After 3 Covid vaccines, 2 Phitzer and 1 Moderna (all showed no antibodies in my body). Caught Covid in January (in the hospital for a week). I have now been off my Rituxan treatment for 2 years. My doctor wanted me to get the evusheld treatment to get the antibodies after covid. It worked! Gave me antibodies. I just went again (you have to go every 6 months and get 2 shots in the hip.) No issues with this at all, could not tell I had been given anything. See my specialist tomorrow - hopefully everything OK but he noticed a couple of months ago inflation level is rising slightly.
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Re: Dr. Appt. - Vaccine did not work (no antibodies)
I forgot to say that I also received gammaglobulin therapy when I had Covid.
Is the evushield to provide antibodies to everything or just covid? I will be getting Xembify.
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Re: Dr. Appt. - Vaccine did not work (no antibodies)
I never got the “vax” and ended up getting Covid in late August of 2021.. they gave me the monoclonal antibodies and I pulled through well. September of 2021 I had my last RTXN infusion and have been in remission so far since. I’ve had a couple colds and been exposed to CVD a few times since.. I did, however get tested for antibodies in December 2021 and had loads of antibodies.. I feel blessed and fortunate.. keep up your vitamin d and zinc levels.
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