Not sure how to start. First, I am very glad to find this chat all information are very needed and helpful. I'm here for my sister, she got her diagnose 1 year ago after several operations and biopsies. Her symptoms were not typical, disease attack cranial nerves (facial nerve, nerve for talking and eating) and later, lungs were affected too, she also got thrombosis. Now, she is better, facial palsy is still there but her health situation in general is better. So I have question about remission. Her doctors think that she is in clinical remission (from anca and pr3 and also blood results) but for now on they think she must get every year a ct, to be sure that situation is good. What is your experience with health checks after remission? What is normal procedure? Also, do someone have experience with facial palsy? Thank you for your time.