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Thread: Suspected Sneaky Kidney Involvement

  1. #11
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    Default Re: Suspected Sneaky Kidney Involvement

    yes, isn’t it strange and wonderful how this disease can appear in soooooo many different ways? Just makes me weep with joy at the variety of life.

    Generally, I wouldn’t trust anything I read on Facebook unless I can independently verify it, but from memory, Tea Tree Oil may help the inflammation, and if it does, use it wisely and well. Just keep in mind the pure oil may cause contact dermatitis, in which case stop applying straight away. And don’t ever swallow it. That said, steroid cream or ointment is probably a better alternative, especially if it’s allergy-related (immune disorder, allergens... eh, you get the picture.)

    https://www.mayoclinic.org/drugs-sup...l/art-20364246
    Last edited by Peter Marsham; 03-05-2021 at 09:20 PM.
    Life lessons for all of us;

    Never eat at a place called Mas.
    Never shoot pool with a guy called Pop.
    Never try to eat anything bigger than your head.

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    Default Re: Suspected Sneaky Kidney Involvement

    Hello overyone, sorry I haven't been on here in almost a month since my original post. I finally had a conversation from my March 31st 2021 appointment with my Rheumatologist. She said that my kidney function has declined rapidly from February to March. She's so concerned that she called in the Kidney doctor quickly. My appointment with the kidney clinic isn't until August 6th. They called me last week and told me that my new appointment is April 28th. Wow, that was fast! So because of how fast they're moving to look into this, now I'm starting to panic. Just April 5th from that blood work, it showed that they kidneys improved tremendously...then again, that could be a short term good news thing. The fact that 2 specialists are worried about kidneys that aren't in their own bodies... yes I'm freaking. I'm starting to notice that every day that goes by, I'm doing the count down... the way people are excited to go on a cruise, on a vacation or to a concert. I'm doing it in the freakazoid way, count down to Kidney hell. How do I control my nervousness? The first time this happened in 2009, it was much worse, but because I didn't understand Wegener's/Vasculitis, nor know how to pronounce it, I was ok being sick the way I was. Does Wegener's cause RPGN, rapidly progressive glomerulonephritis? I've heard all sorts of bad things about the kidneys when Wegener's attacks them. I don't understand, I feel fine now. The February flare is long gone over, why is this happening?

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    Default Re: Suspected Sneaky Kidney Involvement

    If you are taking any NSAIDS such as Ibuprofen, Aleve, or Aspirin, stop immediately! They will destroy your kidneys also.

  5. #14
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    Default Re: Suspected Sneaky Kidney Involvement

    Quote Originally Posted by GPA4Me View Post
    If you are taking any NSAIDS such as Ibuprofen, Aleve, or Aspirin, stop immediately! They will destroy your kidneys also.
    I ask out of ignorance and confusion: what analgesics can people with kidney issues take safely? I have stage 3 CKD thanks to GPA.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

  6. #15
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    Default Re: Suspected Sneaky Kidney Involvement

    Quote Originally Posted by Pete View Post
    I ask out of ignorance and confusion: what analgesics can people with kidney issues take safely? I have stage 3 CKD thanks to GPA.
    My doctors told me to only take Tylenol for over the counter stuff. Most prescription stuff will be OK since they know your record.They also have me take a low dosage aspirin daily to try reduce my risk of strokes and heart attacks.
    Last edited by drz; 05-03-2021 at 11:25 PM.
    Knowledge is power! Wisdom is using it to make good decisions!

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  8. #16
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    Default Re: Suspected Sneaky Kidney Involvement

    Tylenol is ok OTC. I am taking Hydrocodone for my lower back pain. It is metabolized by the liver.

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  10. #17
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    Default Re: Suspected Sneaky Kidney Involvement

    Quote Originally Posted by Pete View Post
    I ask out of ignorance and confusion: what analgesics can people with kidney issues take safely? I have stage 3 CKD thanks to GPA.
    Opioid based drugs are generally safe for kidneys, but doctors are now very cautious prescribing them due to misuse and addiction. I use them, but they become ineffective quickly with me, unless I increase the dose. I can't repeatedly increase dose so I tend to stop taking them and when I recommence a good while later, they have regained some efficiency.
    Diagnosed April 1995

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  12. #18
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    Default Re: Suspected Sneaky Kidney Involvement

    Quote Originally Posted by Chadwyck View Post
    Hello overyone, sorry I haven't been on here in almost a month since my original post. I finally had a conversation from my March 31st 2021 appointment with my Rheumatologist. She said that my kidney function has declined rapidly from February to March. She's so concerned that she called in the Kidney doctor quickly. My appointment with the kidney clinic isn't until August 6th. They called me last week and told me that my new appointment is April 28th. Wow, that was fast! So because of how fast they're moving to look into this, now I'm starting to panic. Just April 5th from that blood work, it showed that they kidneys improved tremendously...then again, that could be a short term good news thing. The fact that 2 specialists are worried about kidneys that aren't in their own bodies... yes I'm freaking. I'm starting to notice that every day that goes by, I'm doing the count down... the way people are excited to go on a cruise, on a vacation or to a concert. I'm doing it in the freakazoid way, count down to Kidney hell. How do I control my nervousness? The first time this happened in 2009, it was much worse, but because I didn't understand Wegener's/Vasculitis, nor know how to pronounce it, I was ok being sick the way I was. Does Wegener's cause RPGN, rapidly progressive glomerulonephritis? I've heard all sorts of bad things about the kidneys when Wegener's attacks them. I don't understand, I feel fine now. The February flare is long gone over, why is this happening?
    Hi Chadwyck.
    I've not visited the forum for a while, so missed your post. How are your kidneys doing now?
    Diagnosed April 1995

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