User Tag List

Likes Likes:  257
Page 8 of 8 FirstFirst ... 678
Results 71 to 73 of 73

Thread: Covid vaccins and WG

  1. #71
    Join Date
    Apr 2010
    Posts
    906
    Post Thanks / Like
    Mentioned
    13 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Covid vaccins and WG

    My doctor has talked to me about possibly doing immunoglobulin therapy with me at some point in the future. I'm not sure what criteria he is looking for beyond the fact that I am extremely immune compromised. I do suffer from sinus infections that cannot be cleared up with conventional means - they always return. My ENT says that we might be able to get them bug free but that because of the structures it is likely I would quickly become infected again.

    A large part of the reason i have these infections is that my sinuses have been damaged by many years of Wegener's involvement. The damaged structures makes a great home for the bugs and cannot properly clear themselves. I'm only surviving now with very aggressive cleaning with a variety of potions and antibiotics.

    I am going to be having surgery soon to clear out scar tissue and deformed bone caused by the WG.
    It's not clear how much of my problem is due to reduced immune function or to the damage but the damage can be improved so it's a good place to start.

  2. Likes Pete, John S, Masha, drz, Alysia liked this post
  3. #72
    Join Date
    Nov 2020
    Location
    Iowa, USA
    Posts
    18
    Post Thanks / Like
    Mentioned
    1 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Covid vaccins and WG

    Iím 24 hours out from my 2nd dose of Pfizer vaccine. So far I only have arm soreness and a headache which went away with over the counter meds. Iím taking 5 mg prednisone daily and am now 6 months out of my last Rituxan infusion. My rheumatologist is optimistic Iíll get a good response within 2 weeks, advised waiting 4 weeks until my next infusion.

    So far, so good. Itís a relief to know I might at least have less severe disease if I do get COVID, and that most people around me will be able to get their vaccines very soon.

  4. Likes drz, Alysia, gunnyl liked this post
  5. #73
    Join Date
    Feb 2018
    Location
    Carolinas
    Posts
    277
    Post Thanks / Like
    Mentioned
    15 Post(s)
    Tagged
    0 Thread(s)

    Default Re: Covid vaccins and WG

    First, I must give full disclosure. I followed exactly what you did. Six months out from Rituxin. Got both vaccines. Will get infusion this week, 5 weeks from vaccine. I too thought I reached a safety point. My rheumatologist was completely honest with me regarding B cells, Rituxin and Covid.
    Please research this. It is vital you have this information for your safety. Not fun to hear, but necessary.

  6. Likes drz, Alysia, gunnyl liked this post
Page 8 of 8 FirstFirst ... 678

Tags for this Thread

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •