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Thread: Covid vaccins and WG

  1. #101
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    Default Re: Covid vaccins and WG

    I did not have detectable antibodies after my first 2 vaccine doses, either. An article from a few months back found that something like 25% of patients on Rituxan did produce antibodies after their third dose (I am not entirely sure about that number—I couldn’t find the article, so take with a grain of salt.)

    Anyway, wound up getting COVID about 1 month ago. I contacted my rheumatologist before my test result even came back. He saw it the next morning and I got monoclonal antibodies that same day—sotrovimmab, which is thought to be effective against Omnicron. I am incredibly lucky to get my care (and work at) a teaching hospital, and fortunately I recovered without severe illness and without giving it to any of my close contacts.

    We need to be careful, but there’s plenty of hope, too. Stay safe, everyone!

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  3. #102
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    Default Re: Covid vaccins and WG

    I had been vaccinated with two doses before I got my RTX treatment and did develop antibodies from the vaccination. But my doctor says there is not point in getting a booster shot now since i would not get any response to the booster. The vaccinations did cause a serious flare of my GPA so I have lot of reservation about getting a booster anyway. The flare caused damage to my lungs and shortness of breath. I had been in drug induced remission for 10 years before the flare.
    Knowledge is power! Wisdom is using it to make good decisions!

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  5. #103
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    Default Re: Covid vaccins and WG

    Quote Originally Posted by drz View Post
    I had been vaccinated with two doses before I got my RTX treatment and did develop antibodies from the vaccination. But my doctor says there is not point in getting a booster shot now since i would not get any response to the booster. The vaccinations did cause a serious flare of my GPA so I have lot of reservation about getting a booster anyway. The flare caused damage to my lungs and shortness of breath. I had been in drug induced remission for 10 years before the flare.
    I’m sorry the vaccine caused you to have flareups with resulting tissue damage. It would be extremely valuable to know how often this happens with any vaccine. Definitely an important consideration. Thanks.

  6. #104
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    Default Re: Covid vaccins and WG

    Quote Originally Posted by Susan B View Post
    I’m sorry the vaccine caused you to have flareups with resulting tissue damage. It would be extremely valuable to know how often this happens with any vaccine. Definitely an important consideration. Thanks.
    Local doctors were the ones who surmised i was having a flare of GPA when i saw them for initial symptoms of the flare. They told me several other people had also experienced a relapse in other types of autoimmune disorders after getting vaccinated. It seems reasonable to assume that a vaccination designed to stimulate the immune system into producing antibodies might also mess up a remission of an autoimmune disorder that was kept in check by suppressing the immune system.
    Knowledge is power! Wisdom is using it to make good decisions!

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  8. #105
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    Default Re: Covid vaccins and WG

    I was fortunate (and politely persistent enough) to receive Evusheld today. My PCP’s office connected me to an infectious disease specialist who listened to my story of three vaccinations, two rtx treatments, two negative antibody tests, GPA, and being 75. The next thing I know, I got a phone call yesterday from OSU asking me when I could come and get it. I see Dr VillaForte next month and will ask about another antibody test to see if Evusheld works. I think I’ll request another antibody test in June to see if rtx will clobber the multiclonal antibodies.
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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