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Thread: Covid vaccins and WG

  1. #81
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    Default Re: Covid vaccins and WG

    I had a significant bout of Covid and am still dealing with the repercussions in November 2020. I did not have Rituxin for 10 months. Got the Phizer vaccine. I did not develop any antibodies to the actual vaccine or to the virus. Iím fairly disappointed. Stupid
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  3. #82
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    Default Re: Covid vaccins and WG

    I just came here to share the good news. I got my third Covid shot (Pfizer) and I'm perfectly fine. I was hoping everybody else was going to say the same, but, we're all different. I was nervous at first, thinking that this could be the potential trigger of a flare to happen but because 2 of my doctors advised me to get the shot, I didn't hesitate. Only the first one was discomfort for the first 24 hours. The second one was like getting the flu shot. The third one, I was so busy talking to the lady about side effects I didn't even feel the needle go in. All good news. I had to leave them with a funny joke of the day, however! I said, "If you don't give me the Pfizer like I'm requesting, I want to speak to your SuperPfizer!" LOL Hope everybody is doing well.

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  5. #83
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    Default Re: Covid vaccins and WG

    Hello all,

    after two shots of AZ in March and July, I asked my rheumy about a booster shot, and he heartily agreed that it was for the best - with one stipulation. I’m on 2000mg Mycophenolate daily, which has a bioavailability half life of about seventeen hours. His suggestion was that I halt the mycophenolate for one week, starting a day before the booster shot, in order for some antibody development.

    I had the Pfizer booster a week ago, and start back on mycophenolate tomorrow. The only side effect of the booster was a very sore arm for a day or so, and I haven’t noticed any side effects of halting the immunosuppressants for a week.

    I know that every individual case is different, but if you are questioning the booster or the main COVID shots, perhaps discuss halting your IS course for a short amount of time when you get the vaccines. Obviously, please DO NOT go off your drug courses without talking to,your specialist first, I only presented this as a possible alternative in some cases.
    Life lessons for all of us;

    Never eat at a place called Maís.
    Never shoot pool with a guy called Pop.
    Never try to eat anything bigger than your head.

  6. #84
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    Default Re: Covid vaccins and WG

    I may be an outlier here, but figured I'd share my good news. I am on maintenance 20 mg of Methotrexate only, not Rituxan. I had first 2 Pfizer shots in Jan/Feb, and got a Moderna booster in August. For all shots, I skipped 2 weeks of dosages after the shot. In October, I had an antibody test that showed strong antibodies (+20).

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  8. #85
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    Default Re: Covid vaccins and WG


  9. #86
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    Default Re: Covid vaccins and WG

    John, this is great news for those of us on Rituxin. My rheumatologist notified me yesterday that she is trying to get it for me. We will have so much more freedom. I find myself fearful of so many things. My husband has to have outpatient procedures done at one of our large downtown hospitals. I canít wait in the car because it is in an unsafe parking garage. Means I have to go into the waiting room. I will just mask up and pray. Our 85 year old friend, who is taking care of his wife offered to drive, but I just canít see it. I will have to make this trip twice, next week and again mid January. Whenever I have been the driver it has been in a nice suburb, I park by the door and stay in the car. Wegenerís without B cells is a bad match with Covid.
    Pray.


  10. #87
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    Default Re: Covid vaccins and WG

    I read some studies suggest it might not help much with Omicron version which is now the dominant source of infections. It may not be as deadly or severe but when it results in a massive increase in numbers of people infected the death rate will remain same for our country or even increase as hospital get overwhelmed by sheer numbers. For us vulnerable people this is bad news.
    Knowledge is power! Wisdom is using it to make good decisions!

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  12. #88
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    Default Timing of Covid vaccine/boosters and rituximab

    It's been an interesting week. Late last week, I asked Dr VillaForte if I could get my Covid booster now rather than waiting until late February (a month before my next infusion). She wanted me to get an anti-spike protein antibody test first, so I did. This is the test for Covid antibodies. My result was "no detectable antibodies". I got the Covid booster a few days ago (with Dr VillaForte's belated blessing).I had a reaction similar to my second dose of vaccine. (All I've taken so far is Pfizer.) Low-grade fever, muscle aches, and fatigue that lasted about 24 hours.

    I had both doses of Pfizer vaccine in February. I had rtx infusions in March and September. Two months after the second rtx, I had no Covid antibodies.

    As I look into the future, it looks like I'll have to strike a balance between wiping out my immune system and maintaining some degree of immunity to Covid and the flu. Any thoughts or similar experiences?
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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  14. #89
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    Default Re: Timing of Covid vaccine/boosters and rituximab

    Quote Originally Posted by Pete View Post
    It's been an interesting week. Late last week, I asked Dr VillaForte if I could get my Covid booster now rather than waiting until late February (a month before my next infusion). She wanted me to get an anti-spike protein antibody test first, so I did. This is the test for Covid antibodies. My result was "no detectable antibodies". I got the Covid booster a few days ago (with Dr VillaForte's belated blessing).I had a reaction similar to my second dose of vaccine. (All I've taken so far is Pfizer.) Low-grade fever, muscle aches, and fatigue that lasted about 24 hours.

    I had both doses of Pfizer vaccine in February. I had rtx infusions in March and September. Two months after the second rtx, I had no Covid antibodies.

    As I look into the future, it looks like I'll have to strike a balance between wiping out my immune system and maintaining some degree of immunity to Covid and the flu. Any thoughts or similar experiences?
    I got my first two vaccines in April. The spike antibody test in late May was negative - no detectable antibodies. I got a booster in November, followed by a spike antibody test in December. Again negative! I've asked my doc to look into Evusheld, the recently announced AstraZeneca monoclonal antibodies for pre-exposure. Has anyone on this forum been told if they're eligible for Evusheld, and had anyone got the Evusheld shots? Thanks!

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  16. #90
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    Default Re: Covid vaccins and WG

    @MaxD

    When did you get rtx? Or are you taking something else?
    Pete
    dx 1/11

    "Every day is a good day. Some are better than others." - unknown

    "Take your meds as directed and live your life as fully as you can." - Michael Chacey, MD

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