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Thread: Ear, Nose and Eye involvement.

  1. #21
    Join Date
    Oct 2020
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    Default Re: Ear, Nose and Eye involvement.

    Hi @Alysia ;
    My friends call me Rob or Robert.
    :-)

    Thanks for your contribution

    Saw my rheumatologist yesterday and she has increased methotrexate from 10mg to 20mg

    She also advised to decrease the Prednisolone by 10mg every 2 weeks
    Iím currently on 50mg, until i get to 20mg

    My last bloodwork results came back quite promising as my inflammation markers have come down from 111 (when in hospital) to 10

    My bloodwork has been increased from every 4 weeks to every 2 weeks to closely monitor my response to treatment

    At this point in time Iím feeling quite alright

    Fingers crossed that my current treatment induces remission and that the maintenance works

    Sending you good vibes from Australia

    :-)


    Sent from my iPhone using Tapatalk

  2. Likes Pete, Masha, John S, mishb, Alysia liked this post
  3. #22
    Join Date
    Jul 2018
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    Default Re: Ear, Nose and Eye involvement.

    Hey,

    If I could pile on to the ocular pressure discussion, I'm using Alphagan P and it has my pressure down in the mid-teens. One drop a day. It is liquid gold (very expensive), but thankfully insurance covers it, and it works.

    All the best. This crew is amazing and knows more about GPA than my local rheumatologist.

  4. Likes Dirty Don, dalatingod, Alysia liked this post
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